与作为脑瘫儿童护理伙伴的家长共同设计复杂的治疗干预措施:英格兰基于经验的共同设计研究。

IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL
Jill Massey , Vicki Tsianakas , Anne Gordon , Natalie Sadler , Glenn Robert
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引用次数: 0

摘要

背景:偏瘫型脑瘫患儿的家长越来越多地参与到治疗干预的实施过程中。加强对家长在治疗过程中的支持是优化治疗效果的关键。本研究旨在完善英格兰的一项现有计划,以更好地支持家长合作参与其子女的干预治疗:方法:基于经验的共同设计(EBCD)促进了家长和治疗师之间的合作,以确定共同的改进重点并制定解决方案。研究包括 18 次访谈和 16 次共同设计会议,共有 20 名家长和 8 名治疗师参加。干预措施的开发遵循了 MRC 开发和评估复杂干预措施的框架:家长和治疗师访谈的主题为共同设计工作的优先事项设定提供了信息。出现了三个关键的共同优先事项 a) 获得康复服务;b) 促进伙伴关系;c) 家长学习。根据这些优先事项,三个由家长和治疗师组成的共同设计小组制作了 a) 家长手册;医护人员教育大纲;b) 伙伴关系原则;干预日志的改编;c) 在线家长教育课程:利用 EBCD 让家长和治疗师参与到结构化的共同设计过程中,产生了支持家长为偏瘫儿童提供治疗的创新干预措施。这种合作方法有望提高计划的实施效果和有效性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Co-designing complex therapy interventions with parents as partners in the care of children with cerebral palsy: An Experience-based Co-design study in England

Background

Parents of children with hemiplegic cerebral palsy are increasingly involved in therapy intervention delivery. Enhancing the ways that parents are supported in delivery is key to optimising outcomes. This study aimed to refine an existing programme in England to better support parents partnering in their child’s intervention delivery.

Methods and procedures

Experience-based Co-design (EBCD) fostered collaboration between parents and therapists to identify shared improvement priorities and develop solutions. The study included eighteen interviews and sixteen co-design meetings involving twenty parents and eight therapists in total. Intervention development followed the MRC Framework for developing and evaluating complex interventions.

Outcomes and results

Themes from parent and therapist interviews informed priority setting for the co-design work. Three key shared priorities emerged a) accessing rehabilitation; b) fostering partnership and c) parent learning. Aligned with these priorities, three mixed parent and therapist co-design teams produced a) a parent booklet; an education outline for healthcare professionals; b) partnership principles; adaptations to intervention logbooks c) an online parent education session.

Conclusions and implications

Engaging parents and therapists in a structured co-design process using EBCD yielded innovative interventions supporting parents in delivering therapy for children with hemiplegia. This collaborative approach is anticipated to enhance programme implementation and effectiveness.

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来源期刊
CiteScore
5.50
自引率
6.50%
发文量
178
期刊介绍: Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.
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