没有我们,就没有我们":澳大利亚自闭症女孩、妇女和性别多元化人群的研究重点。

IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Rachel Grove, Hayley Clapham, Tess Moodie, Sarah Gurrin, Gabrielle Hall
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引用次数: 0

摘要

自闭症女孩、女性和性别多元化人群有着特殊的需求,而这些需求在研究中的代表性不足。研究重点通常由资助机构、研究人员、家长、照护者和医疗专业人员确定,可能无法满足自闭症群体的不同需求。这个共同制作的项目旨在确定哪些研究将有益于澳大利亚自闭症女孩、妇女和性别多元化人群的生活。我们采访了 47 名年龄在 7 岁及以上的自闭症女孩、妇女和性别多元化人士,并通过在线调查获得了另外 411 名自闭症人士的反馈意见。自闭症青少年确定了六个关键的优先研究领域,包括:(1)更好地理解和支持学校;(2)了解我们的经历、优势和挑战;(3)自闭症特殊心理健康支持;(4)自闭症友谊和关系;(5)性别多元化经历;(6)让我们的生活更轻松的便利设施。成人自闭症患者确定了八个关键的优先研究领域,包括:(1)了解和支持成年后的特殊需求;(2)创伤、虐待和性暴力经历;(3)支持心理健康和幸福;(4)解决医疗保健中的障碍;(5)了解和支持身体健康需求;(6)解决教育和工作场所中的障碍;(7)了解社会的作用,接受神经多样性和自闭症身份的重要性;(8)与自闭症患者共同设计研究和支持。我们将围绕澳大利亚未来自闭症研究中关注这些优先研究领域的重要性展开讨论。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

'Nothing About Us, Without Us': Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia.

'Nothing About Us, Without Us': Research Priorities for Autistic Girls, Women and Gender Diverse People in Australia.

Autistic girls, women and gender diverse people have specific needs that are underrepresented in research. Research priorities are often established by funding bodies, researchers, parents, carers and health professionals and may not meet the needs of the diverse Autistic community. This co-produced project aimed to identify what research would benefit the lives of Autistic girls, women and gender diverse people in Australia. We interviewed 47 Autistic girls, women and gender diverse people aged seven and above and obtained feedback from an additional 411 Autistic people through an online survey. Autistic young people identified six key research priorities including (1) better understanding and support at school, (2) understanding our experiences, strengths and challenges, (3) autism specific mental health support, (4) Autistic friendships and relationships, (5) experiences of gender diversity and (6) accommodations to make life easier for us. Eight key research priority areas were identified by Autistic adults including (1) understanding and supporting specific needs in adulthood, (2) experiences of trauma, abuse and sexual violence, (3) supporting mental health and wellbeing, (4) addressing barriers in healthcare, (5) understanding and supporting physical health needs, (6) addressing barriers in education and the workplace, (7) understanding the role of society, embracing neurodiversity and the importance of Autistic identity and (8) co-designing research and supports with Autistic people. We provide a discussion around the importance of focusing on these research priority areas in future autism research in Australia.

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来源期刊
CiteScore
8.00
自引率
10.30%
发文量
433
期刊介绍: The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.
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