阿巴拉契亚农村地区心力衰竭和血管性痴呆患者的家庭护理:一项混合方法研究。

IF 4.6 Q2 MATERIALS SCIENCE, BIOMATERIALS
ACS Applied Bio Materials Pub Date : 2024-05-01 Epub Date: 2024-03-29 DOI:10.1177/01939459241242536
Ubolrat Piamjariyakul, Kesheng Wang, Marilyn Smith, Stephanie Young, Saima Shafique, R Osvaldo Navia, Kristine Williams
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引用次数: 0

摘要

导言血管性痴呆和心力衰竭(HF)是成年人群中常见的并存病症。每种疾病都需要家庭护理人员提供大量的家庭护理,尤其是在阿巴拉契亚农村地区。本研究旨在评估护理人员的负担及其身心健康状况,并探讨他们的经验和需求:本研究采用探索性混合方法设计,结合定量和定性研究(N = 20 名护理人员)。我们通过问卷调查、简短回答式访谈和焦点小组讨论收集数据。定量数据采用多变量广义线性模型(GLiM)分析;定性数据采用内容分析:结果:家庭照顾者的平均年龄为 64.95 岁。广义线性模型显示,护理负担与护理者的抑郁/焦虑(r = 0.68,P < .001)和痴呆症护理年数(r = 0.54,P < .05)相关。护理者身体健康状况较差与高频和痴呆症家庭护理准备不足(r = 0.52,P < .05)和男性护理者(r = -0.46,P < .01)有关。护理人员的心理健康状况与抑郁/焦虑相关(r = -0.80,P < .001)。定性数据确定了关键的护理主题:护理的情感影响和身体需求、农村地区缺乏帮助、应对多种疾病进展以及与亲人关系的变化:护理负担与护理人员的家庭护理责任和对支持的需求有关。建议为农村地区高血压和痴呆症患者的家庭护理者量身定制由护士主导的家庭护理准备干预措施。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Family Caregiving of Patients With Heart Failure and Vascular Dementia in Rural Appalachia: A Mixed-Methods Study.

Introduction: Vascular dementia and heart failure (HF) are common co-existing conditions among adult populations. Each condition requires extensive home caregiving from family caregivers, especially those in rural Appalachia. This study aimed to assess caregivers' burden and their physical and mental health status, as well as explore their experiences and needs.

Methods: This study used an exploratory mixed-methods design combining quantitative and qualitative research (N = 20 caregivers). We collected data using questionnaires, short-answered interviews, and focus group discussions. The multivariable generalized linear model (GLiM) was used to analyze quantitative data; content analysis was used for qualitative data.

Results: The average age of family caregivers was 64.95 years. The generalized linear model showed that the caregiving burden was associated with caregivers' depression/anxiety (r = 0.68, P < .001) and their number of dementia caregiving years (r = 0.54, P < .05). Caregivers' poor physical health status was associated with better preparedness for HF and dementia home caregiving (r = 0.52, P < .05) and male caregivers (r = -0.46, P < .01). Caregivers' mental health status was associated with depression/anxiety (r = -0.80, P < .001). The qualitative data identified key caregiving themes: emotional impact and physical demands of caregiving, lack of help in rural areas, dealing with multiple disease progression, and relationship changes with their loved ones.

Conclusion: Caregiving burden was associated with caregivers' home care responsibilities and the need for support. Nurse-led home caregiving preparedness interventions tailored for family caregivers of patients with HF and dementia in rural areas are recommended.

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来源期刊
ACS Applied Bio Materials
ACS Applied Bio Materials Chemistry-Chemistry (all)
CiteScore
9.40
自引率
2.10%
发文量
464
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