削弱体能,关爱潜能

IF 1.9 1区 社会学 Q1 ANTHROPOLOGY
K. ELIZA WILLIAMSON
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引用次数: 0

摘要

本文追溯了养育先天性寨卡综合征患儿的巴西母亲如何通过适应性护理来培养孩子的身体思维,这种护理调动了一系列物质、技术和技巧,以鼓励残疾儿童最大限度地发展身体能力。基于自 2016 年以来对巴西巴伊亚州受寨卡疫情影响的家庭进行的田野调查,我认为巴伊亚州的母亲们在适应性护理方面的密集投资构成了一种方式,她们通过这种方式断言自己的孩子应该得到持续的护理,并对公众关于其孩子缺乏未来的叙述提出质疑,从而挑战了关于谁的身体思维值得 "潜能化 "的排他性观念。在与批判性残疾研究的对话中,我展示了适应性照顾是如何与该领域学者长期以来批评的 "克服 "和 "治愈 "残疾的论述联系在一起的。我利用我的人种学研究来揭示这些批判,并提出了如何在全球南部日常生活的不稳定性中关注发展中的身体思维的塑造。ABSTRACT 本文探讨了巴西母亲如何通过适应性护理来培养孩子的身体思维,这种护理调动了一系列物质、技术和技巧来促进残疾儿童身体能力的最大潜在发展。基于自 2016 年以来对巴西巴伊亚州受寨卡病毒疫情影响的家庭进行的人种学实地研究,我认为巴伊亚州母亲的密集投资构成了一种方式,声称她们的孩子应该得到治疗护理,并对关于他们没有未来的叙事提出质疑,从而挑战了关于哪些身体-心灵值得 "增能 "的充满排斥性观念的叙事。在与 "批判性残疾研究"(Critical Disability Studies)的对话中,我展示了适应训练护理是如何与 "克服 "和 "治愈 "残疾的论述联系在一起的,而这些论述长期以来一直受到该领域的批评。我利用我的人种学研究对这些批评提出质疑,询问我们如何在全球南部岌岌可危的背景下思考在发展中塑造小身体-小心灵的问题。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

HABILITATING BODYMINDS, CARING FOR POTENTIAL: Disability Therapeutics after Zika in Bahia, Brazil

HABILITATING BODYMINDS, CARING FOR POTENTIAL: Disability Therapeutics after Zika in Bahia, Brazil

This article traces how Brazilian mothers raising children with congenital Zika syndrome cultivate their children's bodyminds through habilitative care—care that mobilizes a range of substances, technologies, and techniques to encourage maximum potential development of embodied abilities in young disabled children. Based on fieldwork conducted since 2016 with families impacted by the Zika epidemic in Bahia, Brazil, I argue that Bahian mothers' intensive investments in habilitative care constitute a way of asserting their children's deservingness of ongoing care and of contesting public narratives of their children's lack of futurity, thereby challenging exclusionary ideas about whose bodyminds are worth “potentializing.” In dialogue with critical disability studies, I show how habilitative care is bound to discourses of “overcoming” and “curing” disability that scholars in this field have long criticized. I use my ethnography to unsettle these critiques, asking how to attend to the shaping of developing bodyminds amid the precarities of everyday life in the Global South.

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来源期刊
Cultural Anthropology
Cultural Anthropology ANTHROPOLOGY-
CiteScore
4.80
自引率
0.00%
发文量
41
审稿时长
52 weeks
期刊介绍: Cultural Anthropology publishes ethnographic writing informed by a wide array of theoretical perspectives, innovative in form and content, and focused on both traditional and emerging topics. It also welcomes essays concerned with ethnographic methods and research design in historical perspective, and with ways cultural analysis can address broader public audiences and interests.
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