种族和实际障碍诊断和治疗服务的黑人家庭自闭症青年:混合方法的探索。

IF 3.2 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Harlee Onovbiona, Lauren Quetsch, Rebecca Bradley
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引用次数: 0

摘要

本研究采用混合方法探讨了种族相关障碍和实际障碍对黑人自闭症青少年家庭治疗效果和满意度的影响。在黑人照顾者与自闭症青少年(N = 101)的样本中,我们进行了多元回归来检验报告的种族和实际障碍对父母压力、治疗效果和治疗满意度的影响。护理人员在定性访谈中进一步叙述了他们在诊断和治疗服务方面的经验。研究表明,照顾自闭症青少年的黑人在为他们的孩子寻求治疗和诊断服务时,仍然会遇到一些种族和后勤障碍。这些障碍对照顾者压力和照顾者感知的治疗质量产生负面影响。与黑人照顾者所经历的障碍和压力相反,照顾者通常对他们正在使用的治疗感到满意,并发现它们很有帮助。护理人员讲述的故事进一步阐明了黑人护理人员在为孩子寻求诊断和治疗服务时的混乱经历。这种经历可能会因家庭、专业和系统障碍而恶化,但可以通过宣传、接受、同伴和社区支持以及增加知识来改善。有自闭症青少年的黑人家庭呼吁为自闭症青少年服务的专业人士增加同情、支持、培训和谦逊。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration.

Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration.

The present study explored the role race-related barriers and practical barriers to treatment participation play in treatment effectiveness and satisfaction among Black families with autistic youth using a mixed-method approach. In a sample of Black caregivers with autistic youth (N = 101), multiple regressions were conducted to examine the impact of reported racial and practical barriers on parental stress, treatment effectiveness, and treatment satisfaction. Caregivers provided further narratives on their experience navigating diagnostic and treatment services in qualitative interviews. The study demonstrated that Black caregivers of autistic youth are still encountering several racial and logistical barriers when seeking treatment and diagnostic services for their children. These barriers negatively impact caregiver stress and caregiver perceived treatment quality. Contrary to the barriers and stress experienced by Black caregivers, caregivers are generally satisfied with the treatments they are utilizing and find them helpful. The narratives told by caregivers further elucidate the tumultuous experiences of Black caregivers as they seek diagnostic and treatment services for their children. An experience that may be worsened by family, professional, and systemic barriers, and can be improved by advocacy, acceptance, peer and community support, and increased knowledge. Black families of autistic youth call for increased compassion, support, training, and humility among professionals who serve autistic youth.

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来源期刊
CiteScore
8.00
自引率
10.30%
发文量
433
期刊介绍: The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.
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