"What Services?": Stakeholders' Perceived Unmet Support Needs for Parents With Neurological Disorders.

IF 1.6 3区医学 Q2 REHABILITATION

Canadian Journal of Occupational Therapy-Revue Canadienne D Ergotherapie Pub Date : 2024-06-01 Epub Date: 2023-08-09 DOI:10.1177/00084174231190765

Evelina Pituch, Rym Ben Lagha, Marjorie Aunos, Tiffanie Cormier, Annie Carrier, Cynthia Gagnon, Véronique Gilbert, Aysha Dominique, Antoine Duquette, Marie Turcotte, Rose-Marie Wakil, Carolina Bottari

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引用次数: 0

Abstract

Background. Knowledge about the needs of parents with neurological disorders who take care of young children is limited. Purpose. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Method. Focus groups and individual interviews with parents (n = 8), spouses (n = 5), rehabilitation clinicians (n = 8), community partners (n = 7), and researchers (n = 7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. Findings. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Conclusion. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families' needs.

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"什么服务？利益相关者对神经系统疾病家长未得到满足的支持需求的看法。

背景。人们对照顾幼儿的神经系统疾病父母的需求了解有限。研究目的本定性研究的总体目标是探讨在加拿大环境中，家长们认为尚未得到满足的需求、当前的支持，以及优化对幼儿期患有神经系统疾病的家长的支持的潜在解决方案。研究方法。采用方便取样法，对家长（8 人）、配偶（5 人）、康复临床医生（8 人）、社区合作伙伴（7 人）和研究人员（7 人）进行了焦点小组讨论和个别访谈，共招募了 35 名参与者。进行了归纳式迭代主题分析。研究结果参与者认为社会有必要正式承认残疾父母，调整公共政策，扩大公共项目的范围，考虑儿童发展和家庭幸福，并建立无障碍社区。结论。要满足这些家庭的需求，最重要的是提供量身定制的解决方案，以充分填补服务缺口。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Canadian Journal of Occupational Therapy-Revue Canadienne D Ergotherapie REHABILITATION-

CiteScore

2.80

自引率

11.10%

发文量

审稿时长

>12 weeks

期刊介绍： The Canadian Journal of Occupational Therapy was first published in September 1933. Since that time, it has fostered advancement and growth in occupational therapy scholarship. The mission of the journal is to provide a forum for leading-edge occupational therapy scholarship that advances theory, practice, research, and policy. The vision is to be a high-quality scholarly journal that is at the forefront of the science of occupational therapy and a destination journal for the top scholars in the field, globally.