Implementation of Two Developmental Screening Programs in Sickle Cell Disease Specialty Care.

IF 1.2 Q3 PSYCHOLOGY, CLINICAL
Clinical Practice in Pediatric Psychology Pub Date : 2023-06-01 Epub Date: 2022-09-29 DOI:10.1037/cpp0000458
Alyssa Schlenz, Jeffrey Schatz
{"title":"Implementation of Two Developmental Screening Programs in Sickle Cell Disease Specialty Care.","authors":"Alyssa Schlenz, Jeffrey Schatz","doi":"10.1037/cpp0000458","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>Developmental screening is a critical component of care for children with sickle cell disease (SCD), who are at elevated risk for neurodevelopmental disorders. This report describes the implementation of two related developmental screening programs implemented in different SCD specialty care settings with the purpose of describing screening protocols, outcomes, and lessons learned.</p><p><strong>Methods: </strong>Program One reviewed medical records for 201 children with SCD screened at ages 2 and 4 years. Program Two reviewed program tracking and visit notes for 155 screenings across 67 children screened between 9 and 66 months of age. Key outcomes included characteristics of children screened, screening results, concordance between parent concerns and screening outcomes, and access to evaluation and intervention services.</p><p><strong>Results: </strong>Each program identified a substantial number of children with developmental concerns, including 42% of screenings in Program One and 36% of unique children screened in Program Two. Program One resulted in 56% of identified children receiving follow-up developmental services and 62% receiving developmental monitoring. Program Two resulted in 58% of identified children receiving further evaluation following developmental screening, with 67-75% of children with neurodevelopmental diagnoses receiving intervention services following evaluation. While parent concerns were related to screening outcomes, screening instruments detected many children whose parents did not express developmental concerns.</p><p><strong>Conclusions: </strong>Routine developmental screening is a feasible, acceptable, and effective method for identifying concerns in children with SCD in specialty care. Flexible and collaborative care and sustainability are key considerations for effective programming, with pediatric psychologists uniquely positioned to provide optimal integrated care.</p>","PeriodicalId":37641,"journal":{"name":"Clinical Practice in Pediatric Psychology","volume":null,"pages":null},"PeriodicalIF":1.2000,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10348699/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Clinical Practice in Pediatric Psychology","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1037/cpp0000458","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/9/29 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"PSYCHOLOGY, CLINICAL","Score":null,"Total":0}
引用次数: 0

Abstract

Objective: Developmental screening is a critical component of care for children with sickle cell disease (SCD), who are at elevated risk for neurodevelopmental disorders. This report describes the implementation of two related developmental screening programs implemented in different SCD specialty care settings with the purpose of describing screening protocols, outcomes, and lessons learned.

Methods: Program One reviewed medical records for 201 children with SCD screened at ages 2 and 4 years. Program Two reviewed program tracking and visit notes for 155 screenings across 67 children screened between 9 and 66 months of age. Key outcomes included characteristics of children screened, screening results, concordance between parent concerns and screening outcomes, and access to evaluation and intervention services.

Results: Each program identified a substantial number of children with developmental concerns, including 42% of screenings in Program One and 36% of unique children screened in Program Two. Program One resulted in 56% of identified children receiving follow-up developmental services and 62% receiving developmental monitoring. Program Two resulted in 58% of identified children receiving further evaluation following developmental screening, with 67-75% of children with neurodevelopmental diagnoses receiving intervention services following evaluation. While parent concerns were related to screening outcomes, screening instruments detected many children whose parents did not express developmental concerns.

Conclusions: Routine developmental screening is a feasible, acceptable, and effective method for identifying concerns in children with SCD in specialty care. Flexible and collaborative care and sustainability are key considerations for effective programming, with pediatric psychologists uniquely positioned to provide optimal integrated care.

在镰状细胞病专科护理中实施两项发育筛查计划。
目的:发育筛查是镰状细胞病(SCD)患儿护理的重要组成部分,这些患儿患神经发育障碍的风险较高。本报告介绍了在不同的 SCD 专科医疗机构中实施的两个相关发育筛查项目,旨在说明筛查方案、结果和经验教训:方法: 计划一审查了 201 名 SCD 儿童在 2 岁和 4 岁时接受筛查的医疗记录。计划二审查了 67 名在 9 到 66 个月大时接受筛查的儿童的 155 次筛查的计划跟踪和就诊记录。主要结果包括受筛查儿童的特征、筛查结果、家长关注的问题与筛查结果之间的一致性,以及获得评估和干预服务的情况:结果:每项计划都发现了大量存在发育问题的儿童,其中计划一的筛查率为 42%,计划二的筛查率为 36%。在计划一中,56% 的被确认儿童接受了后续发展服务,62% 接受了发展监测。计划二的结果是,58%被确认的儿童在接受发育筛查后接受了进一步评估,67%-75%被诊断为神经发育异常的儿童在接受评估后接受了干预服务。虽然家长的担忧与筛查结果有关,但筛查工具发现了许多家长并未表达发育担忧的儿童:常规发育筛查是一种可行、可接受且有效的方法,可用于识别专科护理中 SCD 儿童的发育问题。灵活、协作的护理和可持续性是有效计划的主要考虑因素,儿科心理学家在提供最佳综合护理方面具有独特的优势。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Clinical Practice in Pediatric Psychology
Clinical Practice in Pediatric Psychology Psychology-Clinical Psychology
CiteScore
2.30
自引率
18.20%
发文量
50
期刊介绍: Clinical Practice in Pediatric Psychology® publishes articles representing the professional and applied activities of pediatric psychology. The journal comprehensively describes the breadth and richness of the field in its diverse activities;complements the scientific development of the field with information on the applied/clinical side;provides modeling that addresses the ways practicing pediatric psychologists incorporate empirical literature into day-to-day activities;emphasizes work that incorporates and cites evidence from the science base; andprovides a forum for those engaged in primarily clinical activities to report on their activities and inform future research activities. Articles include a range of formats such as commentaries, reviews, and clinical case reports in addition to more traditional empirical clinical studies. Articles address issues such as: professional and training activities in pediatric psychology and interprofessional functioning;funding/reimbursement patterns and the evaluation of the cost-effectiveness of clinical services;program development;organization of clinical services and workforce analyses;applications of evidence based interventions in "real world" settings with particular attention to potential barriers and solutions and considerations of diverse populations;critical analyses of professional practice issues;clinical innovations, e.g., emerging use of technology in clinical practice;case studies, particularly case studies that have enough detail to be replicated and that provide a basis for larger scale intervention studies; andorganizational, state and federal policies as they impact the practice of pediatric psychology, with a particular emphasis on changes due to health care reform.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信