Parental perspectives on support needs and availability of autism services in South and South-Eastern Europe

IF 1.1 Q4 PSYCHOLOGY, DEVELOPMENTAL

Advances in Autism Pub Date : 2021-01-01 DOI:10.1108/AIA-11-2020-0066

Ivana Vasilevska Petrovska, A. Giannakopoulou, Vassiliki Tsecoura, A. Winstanley, R. Miletto, Georgeta Georgeta Constanta Rosca, Biserka Ivanova, Vasiliki Kaisa, Vladimir Trajkovski

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引用次数: 1

Abstract

Purpose Amid the expanding demand on the autism service delivery system, little knowledge is accumulated regarding access and availability of support and services in the region of Southern and South-Eastern Europe – critical for improvement of individual outcomes, as well as family quality of life. The purpose of this paper is to explore how service delivery systems are responding to the specific needs of autistic individuals with autism, as perceived by parents. Design/methodology/approach A qualitative exploratory descriptive method was used. Thematic analysis was used as a pragmatic method to report on the experiences of parents (92% mothers, n = 55) of children, youth and young autistic adults (76% male) across six South and South-Eastern European counties that participated in a survey involving a combination of qualitative and quantitative data collection. Findings Thematic analysis revealed three broad themes: challenging pathways to service utilization, insufficient service options and providers’ competences and lack of continuous and meaningful support across life span. Originality/value The findings from this study add to the small body of literature specific to South and South-Eastern Europe, by exposing problems related to meeting the needs of autistic children and youth and potential ways to strengthen services, as perceived by parents. The findings have potential policy ramifications for the region in which the research was conducted.

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南欧和东南欧家长对支持需求和自闭症服务可得性的看法

目的:随着对自闭症服务提供系统的需求不断扩大，南欧和东南欧地区关于支持和服务的可及性和可获得性方面的知识积累很少，而这对于改善个人结果和家庭生活质量至关重要。本文的目的是探讨服务提供系统如何响应自闭症患者的特殊需求，正如父母所感知的那样。设计/方法/方法采用定性探索性描述方法。主题分析被用作一种实用的方法来报告来自六个南欧和东南欧国家的儿童、青少年和年轻自闭症成年人(76%为男性)的父母(92%为母亲，n = 55)的经历，这些父母参与了一项涉及定性和定量数据收集相结合的调查。专题分析揭示了三大主题:服务利用途径的挑战，服务选择和提供者能力的不足，以及在整个生命周期中缺乏持续和有意义的支持。原创性/价值本研究的发现增加了针对南欧和东南欧的少数文献，揭示了与满足自闭症儿童和青少年需求有关的问题，以及家长认为加强服务的潜在方法。研究结果对开展研究的地区具有潜在的政策影响。

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来源期刊

Advances in Autism PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

2.30

自引率

0.00%

发文量

期刊介绍： Advances in Autism is unique in its focus on the health and care aspects and outcomes for people with autism. The journal''s content is international in focus and peer-reviewed. It includes the following: research-based articles evidence-based clinical and support articles articles on policy and advances in services where these can be internationally applied. Key areas of research covered include: clinical developments people''s experience through qualitative research policy debates and outcomes inclusion and quality of life developmental issues population and epidemiological studies services developments evidence-based reviews of key practice issues.