A scoping review of disparities in health and health-care service provisions experienced by adults with autism spectrum disorder

IF 1.1 Q4 PSYCHOLOGY, DEVELOPMENTAL
Harsimran Kaur Sidhu, M. Greene
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引用次数: 1

Abstract

Purpose Adults with autism spectrum disorder (ASD) are more likely to have a poor health status because of being diagnosed with a range of physical and mental health conditions and experience disparities in health care. The purpose of this study is to find barriers to health care experienced by adults with ASD and find gaps in health care which health-care providers can work to fill. Design/methodology/approach This scoping review aimed to identify studies that report on disparities in health and health-care service provisions experienced by adults with ASD. The authors included articles that described health-care disparities for patients with ASD and were published in peer-reviewed journals between January 2010 and April 2022. The authors searched the following databases and medical journals to search for eligible studies: Google Scholar, Pubmed, Elsevier, Sage Publications and Embase. The authors comprehensively searched key terms related to ASD, health care and disparities. Findings The core defining features of ASD, which include communication and social impairments and deficits in sensory processing, were found to be barriers in the health-care experience of adults with ASD. Continued research and changes in health care, such as developing interventions to empower patients, adequately training providers and increasing the accessibility of the health-care system, are necessary to ensure adults with ASD receive adequate medical care. Research limitations/implications Additionally, clarifying the current literature on this topic can guide future research efforts to explore the influence of factors such as gender and the spectrum of autism itself leading to various levels of abilities and their influence on the health-care experience of adults with ASD. Practical implications Overall, the findings from this scoping review underline the importance of providing readily accessible evidence-based, age-appropriate primary and hospital health care for adults with ASD. Social implications Further interventions are needed to empower patients, adequately train providers, increase the accessibility of the health-care system, increase support for ASD patients and decrease discrimination. Originality/value This paper is a scoping literature review of the original work done by researchers in the field of developmental disorders and health care.
对患有自闭症谱系障碍的成年人在健康和医疗服务方面所经历的差异的范围审查
目的患有自闭症谱系障碍(ASD)的成年人更有可能健康状况不佳,因为他们被诊断患有一系列身心健康状况,并且在医疗保健方面存在差异。这项研究的目的是找出患有自闭症的成年人在医疗保健方面遇到的障碍,并找出医疗保健提供者可以努力填补的医疗保健缺口。设计/方法/方法本范围审查旨在确定报告ASD成年人在健康和医疗服务提供方面存在差异的研究。作者在2010年1月至2022年4月期间发表在同行评审期刊上的文章中描述了ASD患者的医疗保健差异。作者搜索了以下数据库和医学期刊,以搜索符合条件的研究:谷歌学者、Pubmed、爱思唯尔、Sage Publications和Embase。作者全面搜索了与ASD、医疗保健和差异相关的关键术语。研究发现,自闭症谱系障碍的核心特征,包括沟通和社交障碍以及感觉处理缺陷,是自闭症成年患者医疗体验的障碍。为了确保患有自闭症谱系障碍的成年人获得足够的医疗护理,有必要继续研究和改变医疗保健,例如制定干预措施以增强患者的能力,充分培训提供者,增加医疗保健系统的可及性。研究局限性/含义此外,澄清当前有关该主题的文献可以指导未来的研究工作,探索性别和自闭症谱系等因素对不同能力水平的影响,以及它们对自闭症成人医疗体验的影响。实际意义总体而言,这项范围界定审查的结果强调了为患有自闭症谱系障碍的成年人提供易于获得的循证、适龄的初级和医院医疗保健的重要性。社会影响需要进一步的干预措施来增强患者的能力,充分培训提供者,增加医疗保健系统的可及性,增加对自闭症谱系障碍患者的支持,减少歧视。原创性/价值本文是对研究人员在发育障碍和医疗保健领域所做的原创工作的范围界定文献综述。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Advances in Autism
Advances in Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
2.30
自引率
0.00%
发文量
13
期刊介绍: Advances in Autism is unique in its focus on the health and care aspects and outcomes for people with autism. The journal''s content is international in focus and peer-reviewed. It includes the following: research-based articles evidence-based clinical and support articles articles on policy and advances in services where these can be internationally applied. Key areas of research covered include: clinical developments people''s experience through qualitative research policy debates and outcomes inclusion and quality of life developmental issues population and epidemiological studies services developments evidence-based reviews of key practice issues.
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