Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2022-11-08 DOI:10.3109/13668250.2022.2135174

M. D. den Boer, M. A. C. Voermans, P. Embregts

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引用次数: 0

Abstract

ABSTRACT Background Mothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic. Methods A qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis. Results Two overarching themes with various subthemes emerged. The first theme focuses on the impact of being a mother of a young adult with profound intellectual and multiple disabilities who lives at home during the COVID-19 pandemic. The second theme describes both the vulnerability and resilience of the broader system, as well as its need to experience togetherness. Conclusions Families of a young adult with profound intellectual and multiple disabilities exhibit both resilience and vulnerability during the COVID-19 pandemic, underscoring the importance to support and promote the visibility of these families.

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脆弱但团结更强:对患有严重智力残疾和多重残疾的青年成人母亲在2019冠状病毒病大流行期间经历的解释性现象学分析

背景有严重智力残疾和多重残疾的年轻成年人的母亲住在家里，她们不太可能得到正规服务。我们探讨了这些母亲在2019冠状病毒病大流行期间的经历。方法采用三个案例进行定性研究。使用解释性现象学分析分析转录本。结果出现了两个总主题和多个子主题。第一个主题侧重于在2019冠状病毒病大流行期间，作为一名患有严重智力残疾和多重残疾的年轻成年人的母亲的影响。第二个主题描述了更广泛体系的脆弱性和韧性，以及体验团结的必要性。在2019冠状病毒病大流行期间，患有严重智力残疾和多重残疾的年轻成人的家庭既表现出复原力，也表现出脆弱性，这凸显了支持和提高这些家庭知名度的重要性。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.