Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences

IF 1.9 4区医学 Q1 EDUCATION, SPECIAL

Journal of Intellectual & Developmental Disability Pub Date : 2021-08-04 DOI:10.3109/13668250.2021.1954481

C. Bigby, J. Douglas, Elizabeth Smith, T. Carney, Shih-Ning Then, Ilan Wiesel

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引用次数: 8

Abstract

ABSTRACT Background Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Method Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Results Findings fell into three core categories, making the right decision, factors that made decision support difficult, and strategies to manage uncertainty, which included controlling, influencing, expanding the adult’s horizons and enabling risk. Conclusions The knowledge gained will help in building the capacity of parents to provide decision support that better understands and respects the will and preferences of the person they support.

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支持智障成年人探索决策偏好、制约因素和后果的父母策略

支持参与决策是复杂的、动态的和多因素的。本研究的目的是更多地了解智力残疾成年人的父母在提供决策支持方面遇到的困难及其解决策略。方法参与者为23名定期为智力残疾成年人提供决策支持的父母。大多数成年人（19岁）住在家里。在研究期间，家长们至少参加了三次半结构化访谈。我们运用社会建构主义的理论视角和模板方法进行分析。结果研究结果分为三个核心类别，即做出正确的决定、使决策支持困难的因素和管理不确定性的策略，包括控制、影响、扩大成年人的视野和促成风险。结论所获得的知识将有助于培养父母提供决策支持的能力，更好地理解和尊重他们所支持的人的意愿和偏好。

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来源期刊

Journal of Intellectual & Developmental Disability Multiple-

CiteScore

3.40

自引率

7.70%

发文量

期刊介绍： Journal of Intellectual & Developmental Disability (formerly the Australia and New Zealand Journal of Developmental Disabilities) is the official journal of the Australasian Society for the Study of Intellectual Disability (ASSID). JIDD is an international, multidisciplinary journal in the field of intellectual and developmental disability. The journal publishes original qualitative and quantitative research papers, literature reviews, conceptual articles, brief reports, case reports, data briefs, and opinions and perspectives.