Examining the transition to adulthood in autism spectrum disorder: examining the perspectives of autistic individuals, caregivers and service providers

IF 1.1 Q4 PSYCHOLOGY, DEVELOPMENTAL

Advances in Autism Pub Date : 2023-07-25 DOI:10.1108/aia-11-2022-0055

D. Nicholas, Theresa Jubenville-wood, R. Zulla, Katelyn Lowe, L. Zwaigenbaum

{"title":"Examining the transition to adulthood in autism spectrum disorder: examining the perspectives of autistic individuals, caregivers and service providers","authors":"D. Nicholas, Theresa Jubenville-wood, R. Zulla, Katelyn Lowe, L. Zwaigenbaum","doi":"10.1108/aia-11-2022-0055","DOIUrl":null,"url":null,"abstract":"\nPurpose\nThe purpose of this study is to examine how the search for transitional services has been characterized as a challenging experience for autistic youth and their families. Transitional services are reported to be inconsistent and do not address the range of needs that autistic individuals have.\n\n\nDesign/methodology/approach\nIn this study, qualitative interviews were conducted with autistic individuals (n = 31), their parents/caregivers (n = 23) and transition-based service providers (n = 10).\n\n\nFindings\nFindings invite capacity building across sectors, including working with both the autistic individual and their caregiver, and ensuring targeted services commensurate with individual needs related to autism and ancillary challenges. Implications and recommendations for service and system advancement are offered.\n\n\nPractical implications\nCurrent services were reportedly insufficient in meeting the needs of autistic individuals as they transitioned into adulthood. Service areas needing to be bolstered include daily life, community engagement and employment. Capacity building and enhanced training are required. Information and communication strategies require advancement.\n\n\nSocial implications\nA more responsive system is required, which involves support from many societal sectors (e.g. health, mental health, advanced education, social services, industry, housing and justice) over the lifespan. Policy adjustments and organizational mandates need to be reviewed to better consider the needs of transitioning autistic youth and allocate resources accordingly. Partnerships across stakeholder groups are needed.\n\n\nOriginality/value\nThis study provides details on a known but not well understood issue of transition to adulthood for autistic adults. This study is unique in providing first-hand data from transitioning autistic adults, with corroborating data from families and service providers.\n","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":" ","pages":""},"PeriodicalIF":1.1000,"publicationDate":"2023-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Advances in Autism","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1108/aia-11-2022-0055","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"PSYCHOLOGY, DEVELOPMENTAL","Score":null,"Total":0}

引用次数: 0

Abstract

Purpose The purpose of this study is to examine how the search for transitional services has been characterized as a challenging experience for autistic youth and their families. Transitional services are reported to be inconsistent and do not address the range of needs that autistic individuals have. Design/methodology/approach In this study, qualitative interviews were conducted with autistic individuals (n = 31), their parents/caregivers (n = 23) and transition-based service providers (n = 10). Findings Findings invite capacity building across sectors, including working with both the autistic individual and their caregiver, and ensuring targeted services commensurate with individual needs related to autism and ancillary challenges. Implications and recommendations for service and system advancement are offered. Practical implications Current services were reportedly insufficient in meeting the needs of autistic individuals as they transitioned into adulthood. Service areas needing to be bolstered include daily life, community engagement and employment. Capacity building and enhanced training are required. Information and communication strategies require advancement. Social implications A more responsive system is required, which involves support from many societal sectors (e.g. health, mental health, advanced education, social services, industry, housing and justice) over the lifespan. Policy adjustments and organizational mandates need to be reviewed to better consider the needs of transitioning autistic youth and allocate resources accordingly. Partnerships across stakeholder groups are needed. Originality/value This study provides details on a known but not well understood issue of transition to adulthood for autistic adults. This study is unique in providing first-hand data from transitioning autistic adults, with corroborating data from families and service providers.

查看原文本刊更多论文

检查自闭症谱系障碍的成年过渡:检查自闭症个体，照顾者和服务提供者的观点

目的本研究的目的是研究如何寻找过渡服务已经被描述为自闭症青少年和他们的家庭具有挑战性的经历。据报道，过渡性服务不一致，没有解决自闭症患者的各种需求。设计/方法/方法在本研究中，对自闭症个体(n = 31)、他们的父母/照顾者(n = 23)和基于过渡的服务提供者(n = 10)进行定性访谈。调查结果需要跨部门的能力建设，包括与自闭症患者及其护理人员合作，并确保有针对性的服务与自闭症和辅助挑战相关的个人需求相称。对服务和系统的发展提供了启示和建议。据报道，目前的服务不足以满足自闭症患者进入成年期的需要。需要加强的服务领域包括日常生活、社区参与和就业。需要进行能力建设和加强培训。信息和传播战略需要进步。社会影响需要一个反应更灵敏的系统，其中涉及许多社会部门(例如卫生、精神卫生、高等教育、社会服务、工业、住房和司法)在整个生命周期中的支持。需要审查政策调整和组织授权，以便更好地考虑过渡中的自闭症青年的需要，并相应地分配资源。需要在利益相关者群体之间建立伙伴关系。原创性/价值本研究提供了一个已知但尚未被很好理解的自闭症成年人向成年过渡问题的细节。这项研究的独特之处在于提供了来自过渡自闭症成年人的第一手数据，以及来自家庭和服务提供者的确凿数据。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Advances in Autism PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

2.30

自引率

0.00%

发文量

期刊介绍： Advances in Autism is unique in its focus on the health and care aspects and outcomes for people with autism. The journal''s content is international in focus and peer-reviewed. It includes the following: research-based articles evidence-based clinical and support articles articles on policy and advances in services where these can be internationally applied. Key areas of research covered include: clinical developments people''s experience through qualitative research policy debates and outcomes inclusion and quality of life developmental issues population and epidemiological studies services developments evidence-based reviews of key practice issues.