Exploration of caregiver experience for children with ASD: an in-depth perspective

IF 1 Q4 PSYCHOLOGY, DEVELOPMENTAL

Advances in Autism Pub Date : 2023-05-22 DOI:10.1108/aia-09-2022-0044

Neha Gupta, Manya Khanna, R. Garg, Vedantika Sethi, Shivangi Khattar, Purva Tekkar, Shwetha Maria, Muskan Gupta, Akash Saxena, Parul Gupta, Sara Ann Schuchert

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Abstract

Purpose This study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are explored, including the feelings and thoughts of the parents/caregivers, such as the resilience experienced in their journey, how they coped with the challenges and also their positive experiences. Design/methodology/approach In this study, these aspects of the caregiving experience are broadly probed using semi-structured interviews subjected to narrative analysis. Lastly, there is a focus on the role of therapist-led intervention, specifically, the Eye to I© intervention model and its contributions to the parent/caregiver experience. Findings Findings from this study indicate that parents benefit from interventions that bridge gaps in skills and interpersonal communication which parents/caregivers feel they encounter in their day-to-day activities. Additionally, support groups for parents and caregivers could further address these issues. Originality/value This exploration reveals insights about the roles of societal structures and the caregiving journey.

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探究ASD儿童的照顾者体验:深度视角

目的探讨自闭症谱系障碍儿童照顾者的心理情绪和社会体验。本课程探讨了照顾经验的各个方面，包括父母/照顾者的感受和想法，例如他们在旅途中所经历的韧性，他们如何应对挑战以及他们的积极经历。设计/方法/方法在本研究中，使用半结构化访谈进行叙事分析，广泛探讨了护理经验的这些方面。最后，重点关注治疗师主导的干预的作用，特别是眼到我©干预模式及其对父母/照顾者体验的贡献。研究结果本研究的结果表明，父母可以从干预措施中受益，这些干预措施可以弥补父母/照顾者在日常活动中遇到的技能和人际沟通方面的差距。此外，父母和照顾者的支持小组可以进一步解决这些问题。原创性/价值这一探索揭示了社会结构和看护过程的作用。

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来源期刊

Advances in Autism PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

2.30

自引率

0.00%

发文量

期刊介绍： Advances in Autism is unique in its focus on the health and care aspects and outcomes for people with autism. The journal''s content is international in focus and peer-reviewed. It includes the following: research-based articles evidence-based clinical and support articles articles on policy and advances in services where these can be internationally applied. Key areas of research covered include: clinical developments people''s experience through qualitative research policy debates and outcomes inclusion and quality of life developmental issues population and epidemiological studies services developments evidence-based reviews of key practice issues.