Exploration of caregiver experience for children with ASD: an in-depth perspective
IF 1.1
Q4 PSYCHOLOGY, DEVELOPMENTAL
Neha Gupta, Manya Khanna, R. Garg, Vedantika Sethi, Shivangi Khattar, Purva Tekkar, Shwetha Maria, Muskan Gupta, Akash Saxena, Parul Gupta, Sara Ann Schuchert
求助PDF
{"title":"Exploration of caregiver experience for children with ASD: an in-depth perspective","authors":"Neha Gupta, Manya Khanna, R. Garg, Vedantika Sethi, Shivangi Khattar, Purva Tekkar, Shwetha Maria, Muskan Gupta, Akash Saxena, Parul Gupta, Sara Ann Schuchert","doi":"10.1108/aia-09-2022-0044","DOIUrl":null,"url":null,"abstract":"\nPurpose\nThis study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are explored, including the feelings and thoughts of the parents/caregivers, such as the resilience experienced in their journey, how they coped with the challenges and also their positive experiences.\n\n\nDesign/methodology/approach\nIn this study, these aspects of the caregiving experience are broadly probed using semi-structured interviews subjected to narrative analysis. Lastly, there is a focus on the role of therapist-led intervention, specifically, the Eye to I© intervention model and its contributions to the parent/caregiver experience.\n\n\nFindings\nFindings from this study indicate that parents benefit from interventions that bridge gaps in skills and interpersonal communication which parents/caregivers feel they encounter in their day-to-day activities. Additionally, support groups for parents and caregivers could further address these issues.\n\n\nOriginality/value\nThis exploration reveals insights about the roles of societal structures and the caregiving journey.\n","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":" ","pages":""},"PeriodicalIF":1.1000,"publicationDate":"2023-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Advances in Autism","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1108/aia-09-2022-0044","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"PSYCHOLOGY, DEVELOPMENTAL","Score":null,"Total":0}
引用次数: 0
引用
批量引用
Abstract
Purpose
This study aims to examine the psycho-emotional and social experiences of caregivers of children with autism spectrum disorder. Various facets of the caregiving experience are explored, including the feelings and thoughts of the parents/caregivers, such as the resilience experienced in their journey, how they coped with the challenges and also their positive experiences.
Design/methodology/approach
In this study, these aspects of the caregiving experience are broadly probed using semi-structured interviews subjected to narrative analysis. Lastly, there is a focus on the role of therapist-led intervention, specifically, the Eye to I© intervention model and its contributions to the parent/caregiver experience.
Findings
Findings from this study indicate that parents benefit from interventions that bridge gaps in skills and interpersonal communication which parents/caregivers feel they encounter in their day-to-day activities. Additionally, support groups for parents and caregivers could further address these issues.
Originality/value
This exploration reveals insights about the roles of societal structures and the caregiving journey.
探究ASD儿童的照顾者体验:深度视角
目的探讨自闭症谱系障碍儿童照顾者的心理情绪和社会体验。本课程探讨了照顾经验的各个方面,包括父母/照顾者的感受和想法,例如他们在旅途中所经历的韧性,他们如何应对挑战以及他们的积极经历。设计/方法/方法在本研究中,使用半结构化访谈进行叙事分析,广泛探讨了护理经验的这些方面。最后,重点关注治疗师主导的干预的作用,特别是眼到我©干预模式及其对父母/照顾者体验的贡献。研究结果本研究的结果表明,父母可以从干预措施中受益,这些干预措施可以弥补父母/照顾者在日常活动中遇到的技能和人际沟通方面的差距。此外,父母和照顾者的支持小组可以进一步解决这些问题。原创性/价值这一探索揭示了社会结构和看护过程的作用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。