Childhood Worldings of Brittle Bone Disease: A Portrait in 5 Triptych Research Poem

IF 1.1 Q3 EDUCATION & EDUCATIONAL RESEARCH
Brenda Cleary, F. Carnevale, A. Tsimicalis
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引用次数: 0

Abstract

This paper offers a collection of found poems offering insights into representative worlds of children living with dis/abilities, chronic hospitalizations, and the ethical dilemmas surrounding their perioperative care. The collection represents the sum tota poetic crystallization of a multiyear ethnography focused on the ethical experiences of the childhood osteogenesis imperfecta community as encountered in a specialized North American pediatric OI clinic. The collection deliberately bridges multiple separate (yet deeply connected) worlds of children, clinicians, and family members to reveal their interdependence and yet preserve each individual’s distinct viewpoints.
骨脆性疾病的童年世界:五幅三联画研究诗的肖像
本文提供了一组已发现的诗歌,深入了解残疾儿童、慢性住院儿童的代表性世界,以及围绕其围手术期护理的道德困境。该系列代表了一个多年民族志的诗意结晶,该民族志专注于在北美一家专门的儿科OI诊所遇到的儿童成骨不全症社区的伦理经历。该系列有意将儿童、临床医生和家庭成员的多个独立(但联系紧密)世界连接起来,以揭示他们的相互依赖性,同时保留每个人的不同观点。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Childhood Studies
Journal of Childhood Studies EDUCATION & EDUCATIONAL RESEARCH-
自引率
11.10%
发文量
20
审稿时长
42 weeks
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