The experiences of autistic adults during the COVID-19 pandemic in the UK and implications for autism services development

Abstract

Purpose COVID-19 has been challenging for many in the UK. This is no different to many with autism spectrum disorder. Based on the experiences and issues raised by a small group of autistic women in an ongoing support group, consideration if this holds true for the wider adult autistic community across further lockdowns and restrictions to public life was explored. Design/methodology/approach An online questionnaire was created based on the issues raised. Participants indicated the degree to which they agreed or disagreed with each statement. Findings Autistic adults experienced an increase in anxiety and poor mental health, which in turn has exacerbated autistic features, such as rigidity. The data indicates that autistic adults can adapt to change provided there is support in maintaining routines. Research limitations/implications The research is limited due to the small number of participants (N = 120), as well as national variations in service provision. Practical implications Our data raises wider questions about the nature of support for autistic adults without cognitive impairments during times of crises and how services can respond and may even be shaped in the future to provide support that is cost-effective and relevant to autistic adults. Social implications To ensure that services have an awareness of how crises impact on autistic adults and how relatively simple changes may avert poor mental health. Originality/value That the creation of local support networks, and the ability to access these, is a key feature of autism-specific support.