Secondary Caregiving in Alzheimer's Disease and Related Dementias: A Scoping Review of Their Challenges and Contributions.

IF 1.8 3区社会学 Q2 GERONTOLOGY

Research on Aging Pub Date : 2026-04-30 DOI:10.1177/01640275261449482

Abigail Gómez-Morales, Raheleh Bahrami

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引用次数: 0

Abstract

The experiences, roles, key contributions, and support provided by secondary caregivers of people with dementia are underexplored when compared to primary caregivers. This scoping review mapped the existing literature on secondary caregivers. The review followed the PRISMA-ScR framework. Data was subtracted to focus on caregiving outcomes, and on thematic patterns across both qualitative and quantitative designs. Findings from the selected articles (N = 10) indicated that secondary caregivers provide emotional, logistical, and financial support. They also experienced psychological distress, guilt, role conflict, and communication challenges. Family dynamics, gender, and cultural expectations shaped the caregiving experiences and outcomes. The search revealed a scarcity of interventions tailored to this group to enhance overall well-being. Secondary caregivers play a vital role in dementia care. Future interventions that clarify caregiving roles, enhance communication, and provide culturally responsive, family-centered support can strengthen caregiver well-being and promote sustainable caregiving networks.

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阿尔茨海默病和相关痴呆的二级护理：他们的挑战和贡献的范围审查。

与初级照护者相比，二级照护者所提供的经验、作用、关键贡献和支持尚未得到充分探索。这一范围审查绘制了现有文献的次要照顾者。审查遵循PRISMA-ScR框架。数据被删减，以关注护理结果，以及定性和定量设计中的主题模式。所选文章（N = 10）的研究结果表明，二级护理人员提供情感、后勤和经济支持。他们还会经历心理困扰、内疚、角色冲突和沟通挑战。家庭动态、性别和文化期望塑造了护理经验和结果。调查显示，针对这一群体的干预措施缺乏，无法提高他们的整体幸福感。辅助护理人员在痴呆症护理中起着至关重要的作用。未来的干预措施可以明确照护者的角色，加强沟通，并提供符合文化的、以家庭为中心的支持，从而加强照护者的福祉，促进可持续的照护网络。

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来源期刊

Research on Aging GERONTOLOGY-

CiteScore

4.50

自引率

0.00%

发文量

期刊介绍： Research on Aging is an interdisciplinary journal designed to reflect the expanding role of research in the field of social gerontology. Research on Aging exists to provide for publication of research in the broad range of disciplines concerned with aging. Scholars from the disciplines of sociology, geriatrics, history, psychology, anthropology, public health, economics, political science, criminal justice, and social work are encouraged to contribute articles to the journal. Emphasis will be on materials of broad scope and cross-disciplinary interest. Assessment of the current state of knowledge is as important as provision of an outlet for new knowledge, so critical and review articles are welcomed. Systematic attention to particular topics will also be featured.