Parents' Experiences and Expectations From Physiotherapy for Children With Down Syndrome: A Scoping Review.

IF 2 2区医学 Q1 EDUCATION, SPECIAL

Journal of Intellectual Disability Research Pub Date : 2026-06-01 Epub Date: 2026-02-16 DOI:10.1111/jir.70088

Fathimath Akhila, Asir John Samuel

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引用次数: 0

Abstract

Background: Physiotherapy plays a vital role in the care and development of children with Down syndrome (CDS), especially in addressing related health issues. Understanding caregivers' perspectives on physiotherapy for CDS is essential for enhancing service delivery. This scoping review aims to synthesize research on parental experiences and expectations concerning physiotherapy for CDS.

Method: Scoping review methodology follows the recommendations of Arksey and O'Malley and the steps described by the Joanna Briggs Institute. A comprehensive search strategy was employed across four electronic databases: PubMed, Scopus, Web of Science and CINAHL, as well as relevant grey literature sources.

Results: Out of the 97 studies screened, five met the inclusion criteria and were included in the review. Parents widely viewed physiotherapy as essential for their child's development, reporting benefits in motor skills, confidence and independence. However, they also faced challenges such as limited access, emotional strain and service dissatisfaction.

Conclusions: This review enhances our understanding of the experiences and expectations of parents concerning physiotherapy for children with Down syndrome. It identifies important areas where future research and clinical practice can improve developmental outcomes and the quality of life for CDS.

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父母对唐氏综合症儿童物理治疗的经验和期望：一项范围审查。

背景：物理治疗在唐氏综合症儿童的护理和发展中起着至关重要的作用，特别是在解决相关的健康问题方面。了解护理人员对CDS物理治疗的看法对于加强服务提供至关重要。本综述的目的是综合研究父母的经验和期望的物理治疗CDS。方法：范围审查方法遵循Arksey和O'Malley的建议和乔安娜布里格斯研究所描述的步骤。在PubMed、Scopus、Web of Science和CINAHL四个电子数据库以及相关的灰色文献源中采用综合检索策略。结果：在筛选的97项研究中，有5项符合纳入标准并纳入本综述。家长们普遍认为物理治疗对孩子的发展至关重要，他们认为物理治疗对孩子的运动技能、自信心和独立性都有好处。然而，他们也面临着诸如访问受限、情绪紧张和服务不满等挑战。结论：本综述提高了我们对唐氏综合症儿童物理治疗的经验和家长期望的理解。它确定了未来研究和临床实践可以改善CDS发育结果和生活质量的重要领域。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Intellectual Disability Research Multiple-

CiteScore

5.60

自引率

5.60%

发文量

期刊介绍： The Journal of Intellectual Disability Research is devoted exclusively to the scientific study of intellectual disability and publishes papers reporting original observations in this field. The subject matter is broad and includes, but is not restricted to, findings from biological, educational, genetic, medical, psychiatric, psychological and sociological studies, and ethical, philosophical, and legal contributions that increase knowledge on the treatment and prevention of intellectual disability and of associated impairments and disabilities, and/or inform public policy and practice. Expert reviews on themes in which recent research has produced notable advances will be included. Such reviews will normally be by invitation.