Experiences of a lived experience recovery organisation for those in abstinence-based substance use recovery: a thematic analysis.

Abstract

Background: Lived experience recovery organisations (LEROs) are social support services facilitated by those who have shared lived experience. Typically, they aim to build shared identity and reducing stigma in this area, although there is limited knowledge on the experiences of those using LEROs, with research rarely permitted into these groups. The current study aims to provide insight into these groups, examining the experiences of service users in a UK-based LERO focussed on substance use disorder recovery.

Methods: Fifteen service users were interviewed about their experiences attending this LERO. Transcripts from these semi-structured interviews were thematically analysed by authors, with an inductive approach adopted.

Results: Eight themes and 10 sub-themes were identified. Themes were; Feeling supported in recovery, Experiencing life outside of substance use disorder, Fun, Skills acquisition, Preventing relapse by filling time, Gaining a sense of community, Psychological impact, and Changes in public perception. Participants reported having a positive experience within this LERO, particularly in comparison to traditional treatment pathways. Specifically, participants highlighted feelings of self-worth, belongingness, and enjoyment from this LERO - experiences they felt made this treatment pathway unique.

Conclusion: This paper highlighted the importance of peer support in substance use disorder recovery. Embedding those with lived experience into services was highly valued by participants and generated a unique culture of comfort, hope and opportunity. Although the scope of this study was limited to participants only currently attending this organisation, those interviewed significantly valued this LERO, highlighting their future potential to alleviate the lack of satisfaction reported by some around traditional treatment methods.