Defining and measuring emotional well-being in intellectual and developmental disabilities: A scoping review

IF 2.6 2区医学 Q1 EDUCATION, SPECIAL

Research in Developmental Disabilities Pub Date : 2025-10-03 DOI:10.1016/j.ridd.2025.105115

Alecia Mercier , Jessica Koslouski , Sandra Chafouleas , Sophie Hall , Caroline G. Richter

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引用次数: 0

Abstract

Objective

This review aimed to compile and report on existing emotional well-being (EWB) subjective report measures that have been developed, adapted, or validated on individuals with intellectual and developmental disabilities (IDD).

Method

Following PRISMA guidelines, this review searched three databases using search terms related to EWB, IDD, and measurement. Two independent reviewers screened titles and abstracts, then reviewed the full texts to include articles that used an EWB-related measure, had an IDD sample, and reported psychometric evidence (% agreement = 97.41, k = 91.92). For each included article, two coders extracted data, and an item analysis was performed to identify EWB and non-EWB items included in each located measure.

Results

This review identified 33 articles and 20 subjective report measures that were developed, adapted, or validated for individuals with IDD. Most existing measures focus on quality of life rather than treating EWB as a distinct, stand-alone construct, and include only a few EWB items. The included measures were mostly validated on adults and older adults with mild to moderate ID and show varying psychometric evidence across and within measures.

Conclusions

This review clarifies the current state of EWB measurement in individuals with IDD and provides an organized summary of existing EWB measures. These findings can guide the continued development of EWB research in the IDD population by identifying knowledge gaps and pointing to future directions. Findings also help inform the selection of subjective report measures for assessing EWB in individuals with IDD.

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定义和测量智力和发育障碍的情感健康：范围综述

目的：本综述旨在汇编和报告现有的针对智力和发育障碍（IDD）患者的情绪健康（EWB）主观报告测量方法，这些测量方法已被开发、调整或验证。方法按照PRISMA指南，使用EWB、IDD和measurement相关的检索词对三个数据库进行检索。两名独立审稿人筛选标题和摘要，然后审查全文，纳入使用ewb相关测量方法、有IDD样本和报告心理测量证据的文章（%一致性= 97.41,k = 91.92）。对于每篇纳入的文章，两名编码员提取数据，并进行项目分析，以确定每个定位测量中包含的EWB和非EWB项目。结果：本综述确定了33篇文章和20个主观报告指标，这些指标是针对IDD患者开发、调整或验证的。大多数现有的衡量标准关注的是生活质量，而不是将EWB视为一个独特的、独立的结构，并且只包括少数EWB项目。所包括的测量大多在患有轻度至中度ID的成年人和老年人身上得到验证，并且在测量之间和测量内部显示出不同的心理测量证据。结论本综述澄清了IDD患者EWB测量的现状，并对现有EWB测量方法进行了有组织的总结。这些发现可以通过确定知识差距和指出未来方向来指导IDD人群EWB研究的持续发展。研究结果还有助于为评估IDD患者EWB的主观报告措施的选择提供信息。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Research in Developmental Disabilities Multiple-

CiteScore

5.50

自引率

6.50%

发文量

178

期刊介绍： Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.