A Rapid Review Exploring Overnight Camps for Children with Chronic or Serious Illness as a Palliative Care Intervention for Caregivers.

Abstract

Background: Strong evidence supports the benefits of overnight camp for children with chronic and serious illness, yet little research exists on the role of these camps as a palliative, non-hospice intervention for caregivers. With nearly 25 million children and youth in the United States with serious illness, family caregivers are in need of resources and services. Objective: To examine peer-reviewed literature on summer camp as a potential palliative intervention for caregivers of youth with chronic and serious illness and to identify opportunities for future research and policy initiatives. Methods: This study implemented a rapid review methodology that employs an intentional, time-limited approach to inform research and policy initiatives. The review protocol is registered on an international registry of systematic reviews. Data were extracted about study design, quality-of-life measures, and major study findings specific to the caregiver. Quality appraisal tools from the Joanna Briggs Institute were applied. Results: The search yielded 1048 articles; 30 articles were selected for full-text screening; 11 articles were included in our review. These articles included eight qualitative, two mixed-methods, and one quantitative study. Several camps focused on education and disease management skills, whereas others offered an environment of relaxation and reconnection for the caregivers. Several positive themes emerged from the review, such as social well-being and psychological impact. Conclusions: Evidence suggests overnight camps may serve as a palliative intervention for caregivers of children with serious and chronic illnesses. Future research should focus on exploring how family caregivers view overnight camps as a palliative care intervention to improve overall well-being.