Patient Needs and Palliative Care Psychosocial Interventions among a Primarily Hispanic Hepatology Clinic Population at a Large Public Hospital: A Qualitative Chart Review.

IF 2.1 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Susan Enguidanos, Zachary Song, Mekiayla Singleton, Alicia Flores, Aaron D Storms, Carin van Zyl
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Abstract

Background and Aims: Advanced liver disease is the ninth leading cause of death in the United States and the seventh leading cause of death among Hispanic individuals. This study aimed to identify the needs of a predominantly Hispanic patient population with advanced liver disease and the social work interventions provided as part of a palliative care team intervention integrated within a hepatology clinic at a large urban public hospital. Methods: We conducted a retrospective qualitative analysis of palliative care social work medical record entries from a palliative care intervention embedded in a hepatology clinic in the United States. The palliative care social worker was the primary person responsible for the provision of follow-up and case management of patients. Using content analysis, three researchers coded the data; two members of the research team each coded half of the patient records, while the third researcher coded all patient records. Researchers met to reconcile codes and identify themes. Results: Patient stressors included physical symptoms, financial hardship, and challenges related to immigration status. Palliative care psychosocial interventions included psychosocial counseling, end-of-life care planning, social service referrals, substance use support, and help navigating the health care system. Conclusions: Findings illustrate the complex interplay between social determinants of health and disease management for Hispanic patients with advanced liver disease as well as the role of palliative care in providing tailored psychosocial and medical support.

在一家大型公立医院的主要西班牙裔肝病临床人群中,患者需求和姑息治疗心理社会干预:定性图表回顾。
背景和目的:晚期肝病是美国第九大死亡原因,也是西班牙裔美国人第七大死亡原因。本研究旨在确定以西班牙裔为主的晚期肝病患者群体的需求,以及社会工作干预作为姑息治疗团队干预的一部分,整合在一家大型城市公立医院的肝病诊所。方法:我们对来自美国一家肝病诊所的姑息治疗干预的姑息治疗社会工作病历条目进行了回顾性定性分析。姑息治疗社会工作者是负责提供病人随访和病例管理的主要人员。通过内容分析,三位研究者对数据进行编码;研究小组的两名成员每人编码一半的患者记录,而第三名研究人员编码所有的患者记录。研究人员开会协调代码并确定主题。结果:患者的压力源包括身体症状、经济困难和与移民身份相关的挑战。姑息治疗心理社会干预包括心理社会咨询、临终关怀规划、社会服务转诊、物质使用支持和卫生保健系统导航帮助。结论:研究结果说明了西班牙晚期肝病患者健康和疾病管理的社会决定因素之间复杂的相互作用,以及姑息治疗在提供量身定制的社会心理和医疗支持方面的作用。
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来源期刊
Journal of palliative medicine
Journal of palliative medicine 医学-卫生保健
CiteScore
3.90
自引率
10.70%
发文量
345
审稿时长
2 months
期刊介绍: Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments. The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.
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