M. Lombardi , C. Claes , H. Vandenbussche , L.E. Gómez , R.L. Schalock
{"title":"Using a participative process to implement CRPD articles towards quality of life outcomes","authors":"M. Lombardi , C. Claes , H. Vandenbussche , L.E. Gómez , R.L. Schalock","doi":"10.1016/j.ridd.2025.105025","DOIUrl":null,"url":null,"abstract":"<div><div>A quality of life (QOL) framework, theoretically grounded and contextually sensitive, has been used to measure the impact of policy outcomes such as the United Nations Convention on the Rights of Persons with Disabilities (CRPD). This article presents an operational definition of supports to implement the CRPD toward QOL outcomes using a participative process. Each item of the CRPD has been paired by the means of an international Delphi study to specific support strategies. A panel of 93 experts (by knowledge and experience) from 17 countries participated in a multi-round process to define specific supports and their exportability to people with a disability. Consensus was achieved reaching an agreement of 75 % on 85 pairings of CRPD items-elements of supports and related support strategies to promote the impact of CRPD articles towards QOL outcomes. Furthermore, the operationalization of the CRPD through the development of assessment instruments, and the suggested strategies serve as an exemplary application of a QOL framework for policy implementation.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"162 ","pages":"Article 105025"},"PeriodicalIF":2.9000,"publicationDate":"2025-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Research in Developmental Disabilities","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S089142222500109X","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"EDUCATION, SPECIAL","Score":null,"Total":0}
引用次数: 0
Abstract
A quality of life (QOL) framework, theoretically grounded and contextually sensitive, has been used to measure the impact of policy outcomes such as the United Nations Convention on the Rights of Persons with Disabilities (CRPD). This article presents an operational definition of supports to implement the CRPD toward QOL outcomes using a participative process. Each item of the CRPD has been paired by the means of an international Delphi study to specific support strategies. A panel of 93 experts (by knowledge and experience) from 17 countries participated in a multi-round process to define specific supports and their exportability to people with a disability. Consensus was achieved reaching an agreement of 75 % on 85 pairings of CRPD items-elements of supports and related support strategies to promote the impact of CRPD articles towards QOL outcomes. Furthermore, the operationalization of the CRPD through the development of assessment instruments, and the suggested strategies serve as an exemplary application of a QOL framework for policy implementation.
生活质量(QOL)框架具有理论基础和背景敏感性,已被用于衡量《联合国残疾人权利公约》(CRPD)等政策成果的影响。本文采用参与式过程,对支持实施《残疾人权利公约》以实现 QOL 成果的操作性定义进行了介绍。通过一项国际德尔菲研究,《残疾人权利公约》的每项内容都与具体的支持策略相匹配。一个由来自 17 个国家的 93 名专家(根据知识和经验)组成的小组参与了多轮程序,以确定具体的支持措施及其对残疾人的可输出性。就《残疾人权利公约》的 85 个配对项目--支持要素和相关支持战略达成了 75% 的共识,以促进《残疾人权利公约》条款对 QOL 成果的影响。此外,通过制定评估工具和建议的战略,《残疾人权利公约》的可操作性成为将 QOL 框架应用于政策实施的典范。
期刊介绍:
Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.