A new quality of life index to enhance the inclusion of primary education students with intellectual and developmental disabilities in Spain: A preliminary study

IF 2.6 2区医学 Q1 EDUCATION, SPECIAL

Research in Developmental Disabilities Pub Date : 2025-03-23 DOI:10.1016/j.ridd.2025.104975

Antonio M. Amor , Victoria Sánchez-Gómez , Miguel Á. Verdugo , Alba Aza , Zofia Wolowiec

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引用次数: 0

Abstract

Background

The Quality of Life Index-Primary Education (QoLI-PE) is a quality of life (QoL) assessment instrument under development that seeks to enhance the inclusion of students with intellectual and developmental disabilities (IDD) enrolled in primary, general education in Spain. The goal of this work was to report evidence on its functioning through a pilot study and characterize the QoL of the participating students with IDD.

Methods

130 primary education students with IDD were assessed with the QoLI-PE. The pilot study involved analyzing the quality of the items, the internal structure of the tool using Confirmatory Factor Analysis (CFA), and its internal consistency (Cronbach’s α, ordinal α, and ω). Descriptive statistics were calculated for each QoL domain to characterize the QoL of students with IDD. Repeated-measures ANOVA were run to compare the domains at the within-subjects level, while independent samples t test and one-way ANOVAs were performed to test for between-groups comparisons.

Results

After refining the items, the CFA supported the internal structure of the instrument based on the theoretical model of QoL composed by eight first-order intercorrelated domains (χ²/df = 1.266; RMSEA =.045; CFI =.985; TLI =.984). Internal consistency was excellent for all the domains (all indices above.75). Emotional wellbeing and self-determination were identified as areas of concern. Significant differences were found between the levels of disability according to limitations in social skills (for material wellbeing) and in practical skills (physical wellbeing and self-determination).

Conclusions

The QoLI-PE stands as a robust tool for its purpose. Strategies for QoL improvement are outlined, and future lines of research are provided.

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一项新的生活质量指数，以提高西班牙智力和发育障碍小学生的包容性：初步研究

生活质量指数-小学教育（QoLI-PE）是一种正在开发的生活质量（QoL）评估工具，旨在提高西班牙智力和发育障碍（IDD）学生在小学普通教育中的包容性。这项工作的目的是通过一项试点研究报告其功能的证据，并描述参与研究的IDD学生的生活质量。方法采用QoLI-PE对130名小学生IDD进行评估。初步研究包括使用验证性因子分析（CFA）分析项目的质量，工具的内部结构及其内部一致性（Cronbach 's α，序数α和ω）。对每个生活质量域进行描述性统计，以表征IDD学生的生活质量。使用重复测量方差分析来比较受试者内水平的域，而使用独立样本t检验和单向方差分析来检验组间比较。结果在对项目进行细化后，CFA基于由8个一阶相互关联域组成的生活质量理论模型来支持仪器的内部结构(χ²/df = 1.266；RMSEA = .045;CFI = .985;= .984 TLI)。所有领域的内部一致性都很好（所有指数都在0.75以上）。情绪健康和自我决定被认为是值得关注的领域。根据社会技能（物质健康）和实践技能（身体健康和自我决定）的限制，残疾水平之间存在显著差异。结论QoLI-PE是一种可靠的工具。本文概述了改善生活质量的策略，并提供了未来的研究方向。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Research in Developmental Disabilities Multiple-

CiteScore

5.50

自引率

6.50%

发文量

178

期刊介绍： Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.