Using National Survey Data to Estimate Healthcare Communication Disparities for Adults With Intellectual and Developmental Disabilities.

IF 2.1 2区医学 Q1 EDUCATION, SPECIAL

Journal of Intellectual Disability Research Pub Date : 2025-03-11 DOI:10.1111/jir.13224

Jamie Koenig, Lauren Bishop

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引用次数: 0

Abstract

Background: Previous studies have identified considerable health outcome disparities for adults with intellectual and developmental disabilities (IDD) as well as poor or ineffective communication between adults with IDD and their medical providers.

Methods: Using National Health Interview Survey (NHIS) data, this paper uses logistic regression to estimate disparities in healthcare communication and satisfaction between adults with IDD, adults with non-IDD disabilities, and adults with no reported disabilities, controlling for sociodemographic characteristics. Communication quality is measured with survey questions about whether medical providers are respectful, ask for patients' opinions, and offer understandable medical information.

Results: We identified sizeable disparities in communication quality and satisfaction between adults with non-IDD disabilities and no reported disabilities. Adults with IDD experienced significantly lower odds of receiving understandable information compared to adults with no reported disabilities. There are suggestive evidence that adults with IDD have lower odds of being satisfied with healthcare, having their opinion asked, and feeling respected.

Conclusions: There are healthcare communication and satisfaction disparities between adults with and without IDD or other disabilities. Future research should characterise the size and exact nature of these disparities in communication quality and satisfaction for those with IDD. These findings can inform interventions and trainings to improve communication quality and satisfaction for those with all forms of disability.

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利用国家调查数据估计智力和发育障碍成人的医疗保健沟通差异。

背景：以前的研究已经确定了智力和发育障碍（IDD）成年人的健康结果存在相当大的差异，以及IDD成年人与其医疗提供者之间沟通不良或无效。方法：利用全国健康访谈调查（NHIS）数据，在控制社会人口学特征的情况下，采用logistic回归方法估计IDD成人、非IDD残疾成人和无报告残疾成人在医疗保健沟通和满意度方面的差异。沟通质量是通过调查问题来衡量的，包括医疗服务提供者是否尊重病人，是否征求病人的意见，是否提供可理解的医疗信息。结果：我们确定了非idd残疾和未报告残疾的成年人在沟通质量和满意度方面存在相当大的差异。与没有残疾报告的成年人相比，患有IDD的成年人接受可理解信息的几率明显较低。有暗示性证据表明，患有IDD的成年人对医疗保健感到满意的几率较低，他们的意见被询问的几率较低，感觉受到尊重的几率较低。结论：有缺乏症或其他残疾的成年人与没有缺乏症或其他残疾的成年人之间存在医疗保健沟通和满意度差异。未来的研究应该描述这些在通讯质量和对缺d患者满意度方面的差异的大小和确切性质。这些发现可以为干预和培训提供信息，以提高各种形式残疾人士的沟通质量和满意度。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Intellectual Disability Research Multiple-

CiteScore

5.60

自引率

5.60%

发文量

期刊介绍： The Journal of Intellectual Disability Research is devoted exclusively to the scientific study of intellectual disability and publishes papers reporting original observations in this field. The subject matter is broad and includes, but is not restricted to, findings from biological, educational, genetic, medical, psychiatric, psychological and sociological studies, and ethical, philosophical, and legal contributions that increase knowledge on the treatment and prevention of intellectual disability and of associated impairments and disabilities, and/or inform public policy and practice. Expert reviews on themes in which recent research has produced notable advances will be included. Such reviews will normally be by invitation.