Embracing dissensus in lived experience research: the power of conflicting experiential knowledge

Abstract

Lived experience is a crucial component in the development of innovative interventions and services in mental health care. To unlock the full potential of this valuable source of knowledge, it is essential to actively cultivate and understand it. A common concern, however, is the variability of perspectives, as individuals with lived experience might express opposing views on some issues. Building on our own journey as researchers with a combination of academic training and lived experience, we have developed an approach that treats dissensus not necessarily as a challenge to be resolved through consensus, but rather as a source of innovation. Our approach involves a two-step model. First, we identify the genuine points of disagreement or true negations between us. Next, we clarify the epistemic goal of the inquiry at hand. Based on this process, we determine whether the dissensus—often a rich, complex expression of variation—offers deeper insights, or if a more generalised, consensus-based message would be the most effective way to answer the inquiry. With this Personal View, we hope to inspire collaborators, both with and without lived experience, to engage rigorously and enthusiastically with dissensus, recognising its potential as a driver of innovation.