Families’, practitioners’, and researchers’ experience in the trajectory for the diagnostic evaluation of developmental disorders in young children

IF 2.9 2区医学 Q1 EDUCATION, SPECIAL

Research in Developmental Disabilities Pub Date : 2025-01-30 DOI:10.1016/j.ridd.2025.104918

Nadia Abouzeid , Mélina Rivard , Claudine Jacques , Catherine Mello , Nikolas Parent-Poisson , Élodie Hérault , Geneviève Saulnier

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引用次数: 0

Abstract

Background

A collaborative initiative was undertaken to restructure diagnostic and support services for developmental disabilities (DD) in young children in the province of Québec. Representatives from multiple stakeholder groups, including researchers, parents, and clinicians, shared insights based on their experiences with diagnostic evaluation services.

Aims

The present study documented stakeholders’ experiences with existing DD services, with a focus on identifying barriers, facilitators, and gathering actionable recommendations for the creation of a new model for diagnostic evaluation.

Method

Twenty-nine stakeholders shared their experiences in focus group and individual interviews. Their discourse was analyzed according to the quality determinants of the ETAP framework (Rivard et al., 2020) and categorized as barriers, facilitators, or recommendations.

Results

Stakeholders described several barriers related to continuity and accessibility within the current system but also discussed some facilitators that promoted, e.g., the accessibility and validity of services. They made several recommendations to improve upon or clarify existing elements and identified what could be added.

Conclusions

These testimonials from stakeholders emphasize the need to conceptualize the DD service trajectory as a whole. This will require improving upon information-sharing and collaboration practices, formalizing procedures, and adding case navigation and parent support modalities.

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家庭、从业人员和研究人员在幼儿发育障碍诊断评估轨迹方面的经验。

背景：开展了一项合作倡议，以重组曲海姆省幼儿发育障碍诊断和支助服务。来自多个利益相关者团体的代表，包括研究人员、家长和临床医生，根据他们在诊断评估服务方面的经验分享了见解。目的：本研究记录了利益相关者对现有DD服务的经验，重点是识别障碍、促进因素，并收集可操作的建议，以创建诊断评估的新模型。方法：29名利益相关者通过焦点小组和个人访谈的方式分享他们的经验。根据ETAP框架的质量决定因素（Rivard et al., 2020）对他们的话语进行分析，并将其归类为障碍、促进因素或建议。结果：利益相关者描述了当前系统中与连续性和可及性相关的几个障碍，但也讨论了促进服务可及性和有效性的一些促进因素。他们提出了几项建议，以改进或澄清现有的要素，并确定可以增加的内容。结论：这些来自利益相关者的证词强调了将DD服务轨迹作为一个整体概念化的必要性。这将需要改进信息共享和协作实践，使程序正式化，并增加病例导航和家长支持模式。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Research in Developmental Disabilities Multiple-

CiteScore

5.50

自引率

6.50%

发文量

178

期刊介绍： Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.