Bedouin fathers of children with developmental disabilities—Stress, stigma and collaboration with professionals

IF 2.9 2区医学 Q1 EDUCATION, SPECIAL

Research in Developmental Disabilities Pub Date : 2025-02-01 DOI:10.1016/j.ridd.2024.104902

I. Manor-Binyamini

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引用次数: 0

Abstract

Background

Research has not fully elucidated the challenges experienced by the caregivers of children with developmental disabilities (DDs) in different sociocultural contexts. Studies on parents, especially fathers, of children with DDs in the Middle East are especially rare. Similarly, the subject of collaboration between Bedouin fathers and professionals has seen little research. This study fills these gaps by highlighting the experiences of Bedouin fathers raising children with DDs.

Aims

This study answered the following questions: A) Do stigma and stress affect the collaboration between Bedouin fathers and professionals? B) Do relationships exist between stigma, stress and collaboration?

Methods

Eighty-eight Bedouin fathers of children with DDs completed questionnaires on sociodemographic details, stigma, stress and collaboration between parents and professionals. Data were analysed using Pearson correlations, a correlation matrix and hierarchical linear regression.

Results

The findings revealed a significant positive relationship between stigma and stress, a significant negative relationship between stigma and collaboration and a significant negative relationship between stress and collaboration. Three demographic characteristics were associated with greater influence on fathers’ collaboration with professionals: 1) comorbidity in s child’s diagnosis, 2) age of DD diagnosis and 3) father’s age.

Conclusions and implications

The findings emphasise the need to develop tailored intervention programmes to assist fathers in reducing their sense of stigma and stress and in increasing their competence in collaborating with professionals.

查看原文本刊更多论文

患有发育障碍儿童的贝都因父亲——压力、耻辱和与专业人员的合作。

背景：研究尚未完全阐明不同社会文化背景下发育障碍儿童照料者所面临的挑战。对中东儿童多动症的父母，尤其是父亲的研究尤其罕见。同样，关于贝都因父亲和专业人士之间合作的研究也很少。这项研究通过强调贝都因父亲抚养患有发育障碍儿童的经验，填补了这些空白。目的：本研究回答了以下问题：A)耻辱和压力是否影响贝都因父亲与专业人员之间的合作？B)耻辱、压力和合作之间存在关系吗？方法：88名贝多因儿童的父亲填写问卷，内容包括社会人口学细节、病耻感、压力和父母与专业人员的合作。使用Pearson相关性、相关矩阵和层次线性回归分析数据。结果：耻辱感与压力呈显著正相关，耻辱感与协作呈显著负相关，压力与协作呈显著负相关。三个人口统计学特征对父亲与专业人员合作的影响更大：1)儿童诊断的合并症，2)DD诊断的年龄和3)父亲的年龄。结论和影响：研究结果强调需要制定量身定制的干预方案，以帮助父亲减少他们的耻辱感和压力，并提高他们与专业人员合作的能力。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Research in Developmental Disabilities Multiple-

CiteScore

5.50

自引率

6.50%

发文量

178

期刊介绍： Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.