Concordance between parental and self-rated and performance-based measures of executive functioning in boys with Duchenne muscular dystrophy: the role of parental life satisfaction and carrier versus non-carrier status.
Jonas Gillenstrand, Malin Broberg, Anna-Karin Kroksmark, Mar Tulinius, Anne-Berit Ekström
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引用次数: 0
Abstract
The aim of this study was to examine the concordance between parental and self-rated and performance-based tests of executive function in boys with Duchenne muscular dystrophy (DMD). A secondary aim was to explore how this concordance is related to parents' self-rated life satisfaction and status as a carrier mother versus non-carrier mother. In a cross-sectional study design, 70 boys with DMD, aged 5-14, and their parents were included. Results indicated no significant correlation between performance-based measures and parental or self-rated assessments of executive function (EF). However, parents with low life satisfaction and/or carrier status rated their child's EF skills significantly lower. But self-rated life satisfaction did not correlate with status as a carrier mother or the performance-based measures of the boys' and the boys' performance-based EF skills did not correlate with either their parents' life satisfaction or status as a carrier mother. These findings indicate that the two sources of information may not measure the same construct. One possible explanation for this is that our data supports the framework of hot and cold executive function (EF) skills and that these EF skills must be identified using different methods. Another possible explanation could be that parental ratings of child EF skills may also include measurement of carrier burden, parents EF skills, and the families' abilities for psychosocial adjustments in everyday life.
期刊介绍:
The purposes of Child Neuropsychology are to:
publish research on the neuropsychological effects of disorders which affect brain functioning in children and adolescents,
publish research on the neuropsychological dimensions of development in childhood and adolescence and
promote the integration of theory, method and research findings in child/developmental neuropsychology.
The primary emphasis of Child Neuropsychology is to publish original empirical research. Theoretical and methodological papers and theoretically relevant case studies are welcome. Critical reviews of topics pertinent to child/developmental neuropsychology are encouraged.
Emphases of interest include the following: information processing mechanisms; the impact of injury or disease on neuropsychological functioning; behavioral cognitive and pharmacological approaches to treatment/intervention; psychosocial correlates of neuropsychological dysfunction; definitive normative, reliability, and validity studies of psychometric and other procedures used in the neuropsychological assessment of children and adolescents. Articles on both normal and dysfunctional development that are relevant to the aforementioned dimensions are welcome. Multiple approaches (e.g., basic, applied, clinical) and multiple methodologies (e.g., cross-sectional, longitudinal, experimental, multivariate, correlational) are appropriate. Books, media, and software reviews will be published.