A Research Agenda to Support Families of People With Intellectual and Developmental Disabilities With Intersectional Identities.

IF 1.7 3区医学 Q2 EDUCATION, SPECIAL

Intellectual and Developmental Disabilities Pub Date : 2024-06-01 DOI:10.1352/1934-9556-62.3.162

Lynda Lahti-Anderson, Yoshiko Kardell, Sarah Hall, Sandra Magaña, Michelle Reynolds, Jeanette Córdova

引用次数: 0

Abstract

Family members provide significant practical and emotional support to people with intellectual and developmental disabilities (IDD) across the lifespan. In September 2022, the State of the Science Conference on Community Living: Engaging Persons With Intellectual and Developmental Disabilities From Underserved Racial, Ethnic, Linguistic, and Cultural Groups in Research was held. This article summarizes the efforts of the workgroup that developed research goals related to supporting families of people with IDD. The focus was on families with intersectional identities and minoritized communities. Recommended areas of future research include exploratory research to better understand the experiences of these families, perspectives of families with intersectional identities about the formal support system, funding for family support and services, and inclusive research strategies.

查看原文本刊更多论文

为具有交叉身份的智力和发育障碍人士家庭提供支持的研究议程。

家庭成员为智力和发育障碍（IDD）患者的整个生命周期提供了重要的实际和情感支持。2022 年 9 月，社区生活科学大会（State of the Science Conference on Community Living）召开：让未得到充分服务的种族、民族、语言和文化群体的智力和发育障碍人士参与研究。本文总结了工作组在制定与支持智障人士家庭相关的研究目标方面所做的努力。重点是具有交叉身份的家庭和少数群体。建议的未来研究领域包括：为更好地了解这些家庭的经历而进行的探索性研究、具有交叉身份的家庭对正规支持系统的看法、为家庭支持和服务提供资金以及包容性研究策略。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Intellectual and Developmental Disabilities Multiple-

CiteScore

2.60

自引率

11.10%

发文量

期刊介绍： Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.