“It makes me a better person”: The unique experiences of parenting multiple children who experience neurodevelopmental disability

Abstract

Background

Much research has explored how raising a child with a neurodevelopmental disability influences parents’ well-being. However, little research has focused on the unique experiences of parenting multiple children with neurodevelopmental disabilities. We explored the unique experiences of parenting multiple children with neurodevelopmental disabilities with a focus on mothers’ well-being and social participation.

Methods

Ten mothers who parent multiple children with neurodevelopmental disabilities participated in semi-structured interviews. Interviews were analyzed using a reflexive thematic approach.

Results

Three themes were identified: ‘Knowledge is power’ described positive influences of enhanced disability knowledge and advocacy with each child who experienced disability. ‘Shifts in wellbeing’ acknowledged these mothers’ exhaustion, decreased time for self-care, and invisible work, yet also increased feelings of empowerment, purpose and empathy for others. ‘(Dis)Connection and engagement with others’ reflected struggles of balancing responsibilities, social and community participation, and experiences with isolation. Yet, mothers’ also experienced enhanced disability community and family connections, and a sense of meaning and purpose.

Conclusions and Implications

Findings highlighted challenges, and many rewarding and unique experiences of parenting multiple children with neurodevelopmental disabilities. Health, education and social service practitioners are encouraged to acknowledge parent’s challenges, but also celebrate and draw on families’ strengths and knowledge.