Autism diagnosis experience and parental stress among Portuguese parents

IF 16.4 1区化学 Q1 CHEMISTRY, MULTIDISCIPLINARY

Accounts of Chemical Research Pub Date : 2023-10-31 DOI:10.1108/aia-08-2023-0046

Genta Kulari, Giulia Francisca Sarantakos Cordeiro

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引用次数: 0

Abstract

Purpose This study aims to examine the impact that diagnostic factors such as duration of diagnostic period, number of professionals consulted and perceived social support have on parental stress during the diagnostic process of autism spectrum disorder (ASD). Design/methodology/approach Forty parents of 2–18 year-old children/adolescents with a formal ASD diagnosis recruited from five specialized private clinics in Lisbon completed a survey which included diagnostic questionnaire, parental stress scale and social support scale from April to December 2022. Findings Data analysis indicated that the mean age of the diagnosis was 5.6 years with a delay of 3.95 years from first concern until final diagnosis. On average, parents consulted a mean of 3.62 professionals. Other findings indicated that as age of parents increased, levels of parental stress decreased. Parents with higher levels of social support had lower levels of parental stress. Furthermore, higher age of child at first concern predicted higher affective social support. Originality/value This study reflects on the experience of obtaining the ASD diagnosis in Portugal, raising awareness on the importance of providing early detection and social support for distressed parents.

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葡萄牙父母的自闭症诊断经验与父母压力

目的本研究旨在探讨自闭症谱系障碍(ASD)诊断过程中，诊断期长短、咨询专业人员数量和感知到的社会支持等诊断因素对父母压力的影响。设计/方法/方法从里斯本的五家专业私人诊所招募了40名2-18岁正式诊断为ASD的儿童/青少年的父母，于2022年4月至12月完成了一项调查，包括诊断问卷、父母压力量表和社会支持量表。数据分析显示，患者的平均诊断年龄为5.6岁，从首次发病到最终诊断的延迟时间为3.95年。平均而言，家长咨询了3.62名专业人士。其他研究结果表明，随着父母年龄的增长，父母的压力水平会降低。社会支持水平较高的父母压力水平较低。此外，第一关注年龄越高的儿童，其情感社会支持水平也越高。独创性/价值本研究反映了在葡萄牙获得ASD诊断的经验，提高了人们对早期发现和为痛苦父母提供社会支持的重要性的认识。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Accounts of Chemical Research 化学-化学综合

CiteScore

31.40

自引率

1.10%

发文量

312

审稿时长

2 months

期刊介绍： Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.