Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review.

IF 2.2 Q3 NEUROSCIENCES

Current Developmental Disorders Reports Pub Date : 2023-01-01 Epub Date: 2023-01-31 DOI:10.1007/s40474-023-00268-6

Anke M Scheeren, Laura Crane, Melanie Heyworth, Elizabeth Pellicano

{"title":"Impact of the COVID-19 Pandemic on Autistic Adults: a Scoping Review.","authors":"Anke M Scheeren, Laura Crane, Melanie Heyworth, Elizabeth Pellicano","doi":"10.1007/s40474-023-00268-6","DOIUrl":null,"url":null,"abstract":"Purpose of review: The COVID-19 pandemic and its associated restrictions have had a significant impact on people's everyday lives, including the lives of Autistic adults. We aimed to (a) synthesise all papers currently published on the impact of the COVID-19 pandemic on autistic adults and (b) identify lessons for the care and support of Autistic adults in pandemic and post-pandemic times.Recent findings: Fifty-five papers met the inclusion criteria. Most studies focused on the pandemic's impact on the wellbeing of Autistic adults. Several studies focused on the use of (telehealth) services or the risk of COVID-19 infection/hospitalisation.Summary: Autistic adults were significantly impacted by the pandemic, both directly as indicated by higher COVID-19 infection and hospitalisation rates, but also indirectly due to severe service disruptions and social restrictions. Even though there were large differences observed both between as well as within individuals in terms of the negative/positive effects of the COVID-19 pandemic, most studies reported a negative effect on Autistic adults' mental health. We draw several lessons from this review for the future care and support of Autistic adults, all of which must be underpinned by participatory research methods, that is, where Autistic community members are actively involved in setting research questions, testing the acceptability of the methods and interpreting and disseminating the results.Supplementary information: The online version contains supplementary material available at 10.1007/s40474-023-00268-6.","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"10 1","pages":"92-122"},"PeriodicalIF":2.2000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9887236/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Current Developmental Disorders Reports","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1007/s40474-023-00268-6","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2023/1/31 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"NEUROSCIENCES","Score":null,"Total":0}

引用次数: 0

Abstract

Purpose of review: The COVID-19 pandemic and its associated restrictions have had a significant impact on people's everyday lives, including the lives of Autistic adults. We aimed to (a) synthesise all papers currently published on the impact of the COVID-19 pandemic on autistic adults and (b) identify lessons for the care and support of Autistic adults in pandemic and post-pandemic times.

Recent findings: Fifty-five papers met the inclusion criteria. Most studies focused on the pandemic's impact on the wellbeing of Autistic adults. Several studies focused on the use of (telehealth) services or the risk of COVID-19 infection/hospitalisation.

Summary: Autistic adults were significantly impacted by the pandemic, both directly as indicated by higher COVID-19 infection and hospitalisation rates, but also indirectly due to severe service disruptions and social restrictions. Even though there were large differences observed both between as well as within individuals in terms of the negative/positive effects of the COVID-19 pandemic, most studies reported a negative effect on Autistic adults' mental health. We draw several lessons from this review for the future care and support of Autistic adults, all of which must be underpinned by participatory research methods, that is, where Autistic community members are actively involved in setting research questions, testing the acceptability of the methods and interpreting and disseminating the results.

Supplementary information: The online version contains supplementary material available at 10.1007/s40474-023-00268-6.

Abstract Image

查看原文本刊更多论文

COVID-19 大流行对自闭症成人的影响：范围界定综述。

审查目的：COVID-19 大流行及其相关限制对人们的日常生活（包括自闭症成人的生活）产生了重大影响。我们的目的是：(a) 综述目前发表的所有有关 COVID-19 大流行对成年自闭症患者影响的论文；(b) 找出在大流行和大流行后时期为成年自闭症患者提供护理和支持的经验教训：55 篇论文符合纳入标准。大多数研究侧重于大流行对成年自闭症患者福祉的影响。摘要：自闭症成人受到大流行的严重影响，直接表现为 COVID-19 感染率和住院率的升高，间接表现为严重的服务中断和社会限制。尽管在 COVID-19 大流行的负面/正面影响方面，观察到个体之间以及个体内部都存在很大差异，但大多数研究都报告称自闭症成人的心理健康受到了负面影响。我们从这篇综述中吸取了一些经验教训，以便今后为自闭症成人提供护理和支持，所有这些都必须以参与式研究方法为基础，即自闭症社区成员积极参与研究问题的设定、方法可接受性的测试以及结果的解释和传播：在线版本包含补充材料，可查阅 10.1007/s40474-023-00268-6。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Current Developmental Disorders Reports Psychology-Developmental and Educational Psychology

CiteScore

3.50

自引率

5.00%

发文量

期刊介绍： Current Developmental Disorders Reports commissions expert reviews from leading scientists and clinicians in the field of developmental disorders. What makes the journal unique is its focus—coverage of not one but a host of major disorders in the field, ranging from autism, ADHD, and Tourette’s syndrome, to motor disorders such as cerebral palsy and developmental coordination disorder, through to language and reading disorders such as developmental dyslexia. International authorities serve as editorial board members and section editors, and articles from some of the world’s leading researchers will focus on timely and current reviews of the literature in areas spanning the continuum from bench to communities to individuals. Reviews on new scientific discoveries in neurosciences, genetics, and epidemiology, as well as clinical interventions and policy will provide readers with access to new, innovative, and impactful discoveries as they emerge.