Diversity of Participants in Williams Syndrome Intervention Studies.

IF 3.2 2区心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL

Journal of Autism and Developmental Disorders Pub Date : 2024-10-01 Epub Date: 2023-08-16 DOI:10.1007/s10803-023-06088-2

Eva Shin, Caitlin Ravichandran, Danielle Renzi, Barbara R Pober, Christopher J McDougle, Robyn P Thom

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引用次数: 0

Abstract

Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies.

Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and ethnicity.

Results: Eleven eligible articles were identified. Reporting rates of demographic factors varied considerably, with the highest rates for age and sex (100%) and the lowest reporting rates for race (18%) and ethnicity (9%). Combining demographic data from the two studies that reported on race and/or ethnicity (n = 33), 88% of participants were White. The combined participant mean age was 20.9 years.

Conclusion: There is a low frequency of reporting on several demographic factors including socioeconomic status, race, and ethnicity in WS intervention studies. There is a need for increased representation of racial and ethnic minority groups, older participants, and more cognitively impaired patients in WS research.

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威廉姆斯综合症干预研究参与者的多样性。

目的：本研究描述了威廉姆斯综合症（WS）干预研究中参与者的多样性：方法：通过文献检索来确定包括 WS 患者在内的前瞻性治疗研究。研究提取了有关年龄、性别、认知能力、社会经济地位、种族和民族的报告和信息数据：结果：共发现 11 篇符合条件的文章。人口统计学因素的报告率差异很大，其中年龄和性别的报告率最高（100%），种族（18%）和民族（9%）的报告率最低。将报告了种族和/或民族的两项研究（n = 33）中的人口统计学数据合并，88% 的参与者为白人。合并后的参与者平均年龄为 20.9 岁：结论：在 WS 干预研究中，对包括社会经济地位、种族和民族在内的一些人口统计因素的报告频率较低。在 WS 研究中，有必要增加少数种族和民族群体、年龄较大的参与者以及认知功能受损患者的代表性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Autism and Developmental Disorders PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

8.00

自引率

10.30%

发文量

433

期刊介绍： The Journal of Autism and Developmental Disorders seeks to advance theoretical and applied research as well as examine and evaluate clinical diagnoses and treatments for autism and related disabilities. JADD encourages research submissions on the causes of ASDs and related disorders, including genetic, immunological, and environmental factors; diagnosis and assessment tools (e.g., for early detection as well as behavioral and communications characteristics); and prevention and treatment options. Sample topics include: Social responsiveness in young children with autism Advances in diagnosing and reporting autism Omega-3 fatty acids to treat autism symptoms Parental and child adherence to behavioral and medical treatments for autism Increasing independent task completion by students with autism spectrum disorder Does laughter differ in children with autism? Predicting ASD diagnosis and social impairment in younger siblings of children with autism The effects of psychotropic and nonpsychotropic medication with adolescents and adults with ASD Increasing independence for individuals with ASDs Group interventions to promote social skills in school-aged children with ASDs Standard diagnostic measures for ASDs Substance abuse in adults with autism Differentiating between ADHD and autism symptoms Social competence and social skills training and interventions for children with ASDs Therapeutic horseback riding and social functioning in children with autism Authors and readers of the Journal of Autism and Developmental Disorders include sch olars, researchers, professionals, policy makers, and graduate students from a broad range of cross-disciplines, including developmental, clinical child, and school psychology; pediatrics; psychiatry; education; social work and counseling; speech, communication, and physical therapy; medicine and neuroscience; and public health.