Nour Al Ghriwati, Marcia Winter, Joshua Semko, Thomas E Merchant, Valerie McLaughlin Crabtree
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The feasibility and acceptability of mobile ecological momentary assessment to evaluate sleep, family functioning, and affect in patients with pediatric craniopharyngioma.
Purpose/objectives: We aimed to assess the feasibility and acceptability of mobile ecological momentary assessment (mEMA) for youth with craniopharyngioma and evaluate daily associations among family functioning, affect, and sleep difficulties.
Design/research approach: Youth completed two mEMA diaries per day for one week.
Sample/participants: Thirty-nine youth who underwent surgery and proton radiotherapy (when indicated) for craniopharyngioma.
Methods/methodological approach: Descriptive statistics and multi-level modeling were used to examine feasibility and acceptability of mEMA and daily associations among family functioning, affect, and sleep.
Findings: Youth reported satisfaction and minimal burden from completing daily mEMA diaries. Poorer family functioning was not related to lower sleep efficiency.
Conclusions/interpretation: mEMA is an acceptable and feasible method for evaluating sleep and related variables in children and adolescents with craniopharyngioma.
Implications for psychosocial providers or policy: Results highlight the utility of gathering mEMA data in youth at elevated risk for sleep difficulties as a function of their illness/treatment.
期刊介绍：
Here is your single source of integrated information on providing the best psychosocial care possible from the knowledge available from many disciplines.The Journal of Psychosocial Oncology is an essential source for up-to-date clinical and research material geared toward health professionals who provide psychosocial services to cancer patients, their families, and their caregivers. The journal—the first interdisciplinary resource of its kind—is in its third decade of examining exploratory and hypothesis testing and presenting program evaluation research on critical areas, including: the stigma of cancer; employment and personal problems facing cancer patients; patient education.
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