Tetyana Pylypiv Shippee, Romil R Parikh, Zachary G Baker, Taylor I Bucy, Weiwen Ng, Stephanie Jarosek, Xuanzi Qin, Mark Woodhouse, Manka Nkimbeng, Teresa McCarthy
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引用次数: 0
摘要
目标在患有阿尔茨海默病（AD）和与 AD 相关的痴呆症（AD/ADRD）的疗养院（NH）居民中，护理质量存在种族/民族差异。然而，人们对生活质量（QoL）却知之甚少。本研究调查了患有 AD/ADRD 的新罕布什尔州居民在自我报告的 QoL 方面的种族/民族差异。方法：对明尼苏达州（2012-2015 年）12,562 名患有 AD/ADRD 的长期住院 NH 居民进行了经过验证的亲自 QoL 调查，并将其与最小数据集评估和设施特征联系起来。层次线性模型评估了居民报告的平均 QoL 得分（范围：0-100 分）的差异，并对病例组合和设施因素进行了调整。结果显示与白人居民相比，少数种族/族裔居民报告的平均 QoL 总分明显较低（75.53 分 vs. 80.34 分，p < .001）。在对居民和设施层面的特征进行调整后，种族/人种间的显著差异依然存在，在食物享受、员工关注度和参与度方面存在较大差距。讨论需要改变政策和制定实践指南，以解决患有注意力缺失综合症/注意力缺失性障碍的 NH 居民在 QoL 方面的种族/民族差异。
Racial Differences in Nursing Home Quality of Life Among Residents Living With Alzheimer's Disease and Related Dementias.
ObjectivesAmong nursing home (NH) residents with Alzheimer's disease (AD) and AD-related dementias (AD/ADRD), racial/ethnic disparities in quality of care exist. However, little is known about quality of life (QoL). This study examines racial/ethnic differences in self-reported QoL among NH residents with AD/ADRD. Methods: Validated, in-person QoL surveys from 12,562 long-stay NH residents with AD/ADRD in Minnesota (2012-2015) were linked to Minimum Data Set assessments and facility characteristics. Hierarchical linear models assessed disparities in resident-reported mean QoL score (range, 0-100 points), adjusting for case-mix and facility factors. Results: Compared to White residents, racially/ethnically minoritized residents reported significantly lower total mean QoL scores (75.53 points vs. 80.34 points, p < .001). After adjustment for resident- and facility-level characteristics, significant racial/ethnic differences remained, with large disparities in food enjoyment, attention from staff, and engagement domains. Discussion: Policy changes and practice guidelines are needed to address racial/ethnic disparities in QoL of NH residents with AD/ADRD.
期刊介绍：
The Journal of Aging and Health is an interdisciplinary forum for the presentation of research findings and scholarly exchange in the area of aging and health. Manuscripts are sought that deal with social and behavioral factors related to health and aging. Disciplines represented include the behavioral and social sciences, public health, epidemiology, demography, health services research, nursing, social work, medicine, and related disciplines. Although preference is given to manuscripts presenting the findings of original research, review and methodological pieces will also be considered.
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