有发育性残疾儿童的南非父母的人类能力。

IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES
Lumka Magidigidi, Nicolette V Roman, Inge K Sonn
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引用次数: 0

摘要

背景:养育有发育障碍(DD)的孩子对父母或照顾者的生活以及家庭如何运作有重大影响。这通常是由于一些日常实践的调整,这对父母或照顾者提供儿童保育的人类能力至关重要。在南非,对患有DD的父母或孩子的人类能力进行的研究还不够。目的:探讨改善DD患儿父母或照顾者的人格能力以及DD患儿父母或照顾者的身体健康和身体完整人格能力的现有支持。方法:采用滚雪球抽样法,对11名1 ~ 8岁DD患儿的父母或照顾者进行定性访谈。采用专题数据分析对收集到的数据进行分析。结果:研究结果表明,由于养育患有DD的孩子所带来的情感压力,参与者在抚养孩子方面存在困难。此外,参与者无法负担体面和满意的住所,并且由于负担不起,他们无法获得高质量的食物。结论:缺乏社会支持和照顾负担会影响父母或照顾者抚养发育障碍儿童的能力。贡献:该研究包含了资源不足地区DD儿童家庭的有用信息。这些信息可能对负责设计和执行旨在帮助DD儿童的父母或照顾者的政策的决策者具有重要意义。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Human capabilities of South African parents who have children with developmental disabilities.

Background: Parenting a child with a developmental disability (DD) has a substantial influence on the lives of the parents or caregivers, as well as on how the family operates. This is frequently because of the adjustments in some daily practices that are crucial for parents' or caregivers' human capabilities to provide for childcare. There is not enough research done on human capabilities of parents or children with DD in South Africa.

Objectives: This study investigated the available support in improving the human capabilities of parents or caregivers with children with DD and the bodily health and bodily integrity human capabilities of parents or caregivers with children with DD.

Method: Qualitative interviews were conducted with 11 parents or caregivers of children aged between 1 and 8 years old with DD. This study used snowball sampling. Thematic data analysis was chosen to analyse the data collected.

Results: The results of the study indicate that participants have difficulties bringing up their children because of the emotional strain that goes along with parenting a child with DD. In addition, participants were not able to afford decent and satisfactory shelter and had limited access to good quality food because they could not afford it.

Conclusion: A lack of social support and care burden influences parents' or caregivers' ability to raise their child with developmental disability.

Contribution: The study contains helpful information about families of children with DD in under-resourced locations. The information may be of significance to policymakers who are accountable for designing and executing policies that are targeted at assisting parents or caregivers of children with DD.

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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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