Hannah Casey, Áine Trayer, Deirdre Desmond, Laura Coffey
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引用次数: 0
摘要
背景:决策支持对智障人士很重要。本综述探讨:i)智力残疾成人、其护理伙伴和直接护理支持工作者(DCSWs)如何感知和/或体验日常决策;Ii)用于支持日常决策的技术/方法;iii)遇到的障碍/促成因素。方法:PRISMA系统评价方法,使用PsycInfo、PubMED、Web of Science、CINAHL和Scopus。结果:共纳入论文81篇[定性(n = 69)、定量(n = 7)、混合方法(n = 5)]。智力残疾的成年人报告说,他们想要做决定,需要支持。对安全和决策能力的担忧影响了护理伙伴的支持。DCSWs报告在提供支持时难以平衡客户决定和护理伙伴的关切。支持性决策(SDM)是一种关键的支持方法。障碍和促进者相互联系,并受到压力源的影响。结论:本课题研究不足,定义不清。辅助决策是一种日益流行的方法,其应用需要进一步探索。
Experiences and perceptions of everyday decision-making in the lives of adults with intellectual disabilities, their care partners and direct care support workers.
Decisional support is important to people with intellectual disabilities. This review explores: i) how everyday decision-making is perceived and/or experienced by adults with intellectual disability, their care partners and direct care support workers (DCSWs); ii) techniques/ approaches used to support everyday decision-making; and iii) barriers/facilitators encountered. PRISMA systematic review methodology using PsycInfo, PubMED, Web of Science, CINAHL and Scopus. Eighty-one papers were included [qualitative (n = 69), quantitative (n = 7), mixed methods (n = 5)] was used. Adults with intellectual disability reported wanting to makedecisions and needing support. Care partner support was affected by concerns about safety and decisional capacity. DCSWs reported difficulty balancing client decisions and care partner concerns when providing support. Supported Decision-Making (SDM) was identified as a key method of support. Barriers and facilitators were interconnected and impacted by stressors. This topic is under-researched and ill-defined. Supported decision-making is an increasingly popular approach whose application requires further exploration.
期刊介绍:
The principal aim of the journal is to provide a medium for the exchange of best practice, knowledge and research between academic and professional disciplines from education, social and health settings to bring about advancement of services for people with intellectual disabilities. The idea of a practice-led journal is both exciting and timely. This journal serves as a medium for all those involved with people with intellectual disabilities to submit and publish papers on issues relevant to promoting services for people with intellectual disabilities.