假装游戏干预对癌症儿童健康相关生活质量的影响:一项瑞典-德国研究

IF 1 4区 医学 Q3 NURSING
Stefanie Witt, Julia Quitmann, Anna T Höglund, Sandra Russ, Anne Kaman, Gabriele Escherich, Sara Frygner-Holm
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引用次数: 0

摘要

背景:癌症诊断会给儿童及其家庭带来巨大的身体、情感和社会负担。虽然儿童有知情权和参与照料的权利,但研究表明,在照料情况下,儿童的意见往往得不到考虑。因此,加强儿童的沟通和自我效能感是传达愿望和需求的必要条件。本研究探讨游戏干预是否与健康相关生活质量(HrQoL)的改善和护理情境下沟通的SE相关。我们假设交际的HrQoL和SE在进行假装游戏干预后会有所增加。方法:研究对象为来自德国和瑞典的癌症患儿。假装游戏干预包括6到10个游戏环节。采用异源选择问卷的方法测量儿童在第一次假装游戏前和最后一次游戏干预后的HrQoL和SE。结果:本研究共纳入19个家庭,包括14个儿童自我报告和19个家长代理报告。我们发现,使用通用和癌症特异性HrQoL测量,儿童报告的沟通、情感和社会心理健康有所改善。此外,在游戏干预期间,护理情境下儿童的SE得到改善。家长们还报告说,在一般和慢性一般HrQoL的身体维度上都有轻微的改善,同时独立性也有改善。讨论:总的来说,癌症特定的假装游戏干预为患有癌症的幼儿提供了一个安全的环境,并有助于他们在癌症治疗期间或之后的健康和沟通技巧。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish-German Study.

Background: Cancer diagnosis can lead to massive physical, emotional, and social burdens on children and their families. Although children have the right to be informed and participate in their care, research shows that children's views are often not considered in care situations. Thus, it is essential to strengthen children's communication and self-efficacy (SE) to convey desires and needs. The present study explores whether a play intervention is associated with improved health-related quality of life (HrQoL) and SE for communication in care situations. We hypothesize that HrQoL and SE for communication will increase from the beginning to after the pretend play intervention. Methods: Children with cancer from Germany and Sweden were enrolled. The pretend play intervention consisted of six to 10 play sessions. A heterogenic selection of questionnaires was used to measure children's HrQoL and SE before the first pretend play session and after the last play intervention. Results: Nineteen families were included in the presented analyses, including 14 self-reports of children and 19 proxy reports of parents. We found improvements in child-reported communication, and emotional and psychosocial well-being using generic and cancer-specific HrQoL measurements. Further, children's SE in care situations improved during the play intervention. Parents also reported minor improvements in the physical dimensions in both generic and chronic-generic HrQoL, along with improvements in independence. Discussion: Overall, the cancer-specific pretend play intervention offers young children with cancer a secure environment and can contribute to their well-being, and communication skills, during or after cancer treatment.

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