脉管炎的患者报告结果

IF 4.5 2区医学 Q1 RHEUMATOLOGY

Best Practice & Research in Clinical Rheumatology Pub Date : 2023-03-01 DOI:10.1016/j.berh.2023.101829

Helena Crawshaw , Shalini Janagan , Keziah Austin , Charlotte Baker , Julia Day , Joanna C. Robson

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引用次数: 0

摘要

系统性血管炎包括一组多系统疾病；疾病和治疗策略都会对患者的健康相关生活质量（HRQoL）产生重大影响。使用患者报告的结果测量（PROMs）和患者报告的体验测量（PREMs）来评估患者对其病情、治疗和医疗历程的看法，对于以患者为中心的护理方法至关重要。在本文中，我们将讨论通用、疾病特异性和治疗特异性 PROMs 和 PREMs 在系统性脉管炎中的应用以及未来的研究目标。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Patient-reported outcomes in vasculitis

Systemic vasculitis encompasses a group of multisystem disorders; both the diseases and the treatment strategies can have a significant impact on a patient's health-related quality of life (HRQoL). Using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) to evaluate the patient's view of their condition, treatments, and healthcare journey is essential to the patient-centered care approach. In this paper, we discuss the use of generic, disease-specific, and treatment-specific PROMs and PREMs in systemic vasculitis and future research goals.

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来源期刊

Best Practice & Research in Clinical Rheumatology 医学-风湿病学

CiteScore

9.40

自引率

0.00%

发文量

审稿时长

27 days

期刊介绍： Evidence-based updates of best clinical practice across the spectrum of musculoskeletal conditions. Best Practice & Research: Clinical Rheumatology keeps the clinician or trainee informed of the latest developments and current recommended practice in the rapidly advancing fields of musculoskeletal conditions and science. The series provides a continuous update of current clinical practice. It is a topical serial publication that covers the spectrum of musculoskeletal conditions in a 4-year cycle. Each topic-based issue contains around 200 pages of practical, evidence-based review articles, which integrate the results from the latest original research with current clinical practice and thinking to provide a continuous update. Each issue follows a problem-orientated approach that focuses on the key questions to be addressed, clearly defining what is known and not known. The review articles seek to address the clinical issues of diagnosis, treatment and patient management. Management is described in practical terms so that it can be applied to the individual patient. The serial is aimed at the physician in both practice and training.