在堕胎问题上,我们可以向全球南方国家学习什么?我们如何学习?

Pub Date : 2023-02-20 DOI:10.1111/dewb.12385
Debora Diniz, Giselle Carino
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We can tell stories of community and women driven solutions to overcome the existing legal and policy barriers to accessing safe and legal abortion, such as the Green Wave movement in Argentina, the harm reduction strategy pioneered in Uruguay, hotline services in Peru or Nigeria, digital health solutions in Brazil or Poland, and accompaniment networks in Argentina, or Mexico. All these stories are lived realities of the creative resilience of those who have been surviving in some of the most restrictive settings in the world.</p><p>Throughout these stories from the Global South, there is a recurring theme of creative resilience and models of woman-to-woman care emerging at the community level and then later being embraced by researchers, policymakers, and institutions. It was poor Brazilian women who, in the 1980s, first identified misoprostol as an effective method for self-managed abortion.1 There was no white coat behind the discovery, but the desperate need of a woman seeking a safe means to have an abortion by reading the package leaflets of random medications to find those that showed increased risks of involuntary miscarriage. Forty years later, misoprostol is the main medication used to induce abortion worldwide, according to the World Health Organization. The stories of women who failed or died in this process of self-experimenting using different methods is unknown.</p><p>The validation of women's lived knowledge by science takes time and demands the emergence of a new discourse. A good example is what has been called “harm reduction counseling” to reduce the risk of unsafe abortion. In the Global South, the most popular model for providing harm reduction counseling is through hotlines. The person anonymously calls the service and receives evidence-based information about how to safely perform a self-managed abortion. Sharing information is possible even in restrictive settings, where the medicines are not legally available.</p><p>Women and other persons share abundant stories of how these hotlines helped them in a solitary selfcare experience surrounded by stigma and criminalization. However, too often, academics and policymakers do not consider these stories of lived experiences to have sufficient value or significance unless these stories have withstood certain methodological criteria. A recent systematic review analyzed the literature on abortion harm reduction interventions without the provision of medications, and, from a group of 118 studies, just four were included in the final analysis.2 The quality of the evidence from the other studies was classified as “poor”, even though “it appears that persons who participate in these interventions have low complication and high satisfaction rates”.</p><p>We do not aim to refute the verdict about the quality of the four included studies;3 rather, we want to call attention to the power at play in defining what knowledge counts as valid, where and for whom. We will give an example from the referenced study: the authors “excluded studies describing other approaches aimed to reducing the harms of unsafe abortion if they did not involve direct counselling of pregnant persons within the healthcare system (e.g., the provision of information via hotlines or to pharmacists)”. Moreover, the authors provide no information about the learnings from the excluded studies, which is unfortunate considering that most of the work on harm reduction counselling for self-managed abortion happens at the community level, not in formal health care settings.</p><p>Naomi Braine describes the experiences of harm reduction and self-managed abortion as a case of “autonomous health movements”, e.g. where solutions have been developed more by social movements and communities than by evidenced-based public health strategies.4 Why does such a claim of originality matter to a discussion of ethics? Because counseling on harm reduction and self-managed abortion are tactics of demedicalization, i.e., community-led strategies to redistribute power from health professionals to women and other persons. 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To truly learn with others about their creative resilience in oppressive settings demands a shift in the ordinary ways we develop scientific understandings. It demands more than speaking about the experience of others, but also learning how to speak with them about their realities. It demands knowing what matters to them. In the case of harm reduction solutions and self-managed abortion, community solutions have proven to be far more sustainable than those initiatives controlled by health care personnel. Bioethics has been even more distant to these realities than other empirical fields. 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We will give an example from the referenced study: the authors “excluded studies describing other approaches aimed to reducing the harms of unsafe abortion if they did not involve direct counselling of pregnant persons within the healthcare system (e.g., the provision of information via hotlines or to pharmacists)”. Moreover, the authors provide no information about the learnings from the excluded studies, which is unfortunate considering that most of the work on harm reduction counselling for self-managed abortion happens at the community level, not in formal health care settings.</p><p>Naomi Braine describes the experiences of harm reduction and self-managed abortion as a case of “autonomous health movements”, e.g. where solutions have been developed more by social movements and communities than by evidenced-based public health strategies.4 Why does such a claim of originality matter to a discussion of ethics? 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引用次数: 0

摘要

在美国最高法院的决定为限制堕胎打开了大门之后,国际上对我们可以从全球南方学习如何克服卫生政策和法规方面的不公正障碍的兴趣激增。作为在堕胎问题上有经验的全球南方思想家,我们一直将这种兴趣视为对跨国学习的真正开放。然而,回应并不直截了当。它不是将解决方案从一个社区导入到另一个社区。我们可以讲述社区和妇女推动的解决方案的故事,这些解决方案克服了获得安全和合法堕胎的现有法律和政策障碍,例如阿根廷的绿色浪潮运动、乌拉圭开创的减少伤害战略、秘鲁或尼日利亚的热线服务、巴西或波兰的数字健康解决方案以及阿根廷或墨西哥的陪伴网络。所有这些故事都是那些在世界上一些最受限制的环境中生存下来的人的创造性弹性的生活现实。在这些来自全球南方的故事中,有一个反复出现的主题,即在社区层面出现的创造性弹性和女性对女性护理模式,后来被研究人员、政策制定者和机构所接受。在20世纪80年代,是贫穷的巴西妇女首先发现米索前列醇是一种有效的自我管理堕胎方法这一发现的背后并没有什么光明的一面,而是一名妇女迫切需要通过阅读随机药物的包装传单来寻找增加非自愿流产风险的药物,从而寻求一种安全的堕胎方式。据世界卫生组织称,40年后,米索前列醇是全世界用于人工流产的主要药物。在使用不同方法进行自我实验的过程中失败或死亡的女性的故事是未知的。科学对女性生活知识的验证需要时间,并且需要出现一种新的话语。一个很好的例子就是所谓的“减少伤害咨询”,以减少不安全堕胎的风险。在南半球,提供减少伤害咨询的最流行模式是通过热线。这个人匿名拨打该服务,并收到关于如何安全进行自我管理堕胎的循证信息。即使在药物不能合法获得的限制性环境中,信息共享也是可能的。妇女和其他人分享了大量的故事,讲述了这些热线如何帮助她们摆脱被污名和定罪包围的孤独自我护理经历。然而,学者和政策制定者往往不认为这些生活经历的故事具有足够的价值或意义,除非这些故事经受住了某些方法标准的考验。最近的一项系统综述分析了关于在不提供药物的情况下减少堕胎危害干预措施的文献,从118项研究中,只有4项被纳入最终分析其他研究的证据质量被归类为“差”,尽管“参与这些干预措施的人似乎并发症少,满意度高”。我们的目的不是反驳关于这四项纳入研究的质量的结论;相反,我们想要提请注意在定义什么知识是有效的、在哪里、对谁有效的过程中所起的作用。我们将给出参考研究中的一个例子:作者“排除了描述其他旨在减少不安全堕胎危害的方法的研究,如果它们不涉及在医疗保健系统内对孕妇的直接咨询(例如,通过热线或向药剂师提供信息)”。此外,提交人没有提供关于从被排除的研究中得到的教训的信息,考虑到大多数关于自我管理堕胎的减少伤害咨询工作发生在社区一级,而不是在正式的保健机构,这是令人遗憾的。Naomi Braine将减少伤害和自我管理堕胎的经验描述为"自主卫生运动"的案例,例如,解决办法更多地是由社会运动和社区制定的,而不是由基于证据的公共卫生战略制定的为什么这种原创性主张对伦理讨论很重要?因为关于减少伤害和自我管理堕胎的咨询是非医疗化的策略,即社区主导的将权力从保健专业人员重新分配给妇女和其他人的战略。一个很好的例子是“味噌之歌”,这首歌是由尼日利亚拉各斯的GIWYN组织创作的,它分享了关于如何以及何时使用米索prostol进行自我管理堕胎的知识,包括一个人如何识别副作用,如果它们发生了:“所以只要拿4个味噌,在你的手中,把4个味噌放在你的嘴里,把4个味噌放在舌头下面,味噌就是方法。” 我们如何衡量这种以集体歌唱形式的独特的减少伤害咨询策略的安全性、有效性和可接受性?我们不知道。但这是一个错误的问题。正如我们需要更多地了解全球南方妇女在安全堕胎和在跨国学习社区分享其创造性解决方案的空间方面面临的不公平障碍一样,我们也需要开发新的方法和叙述来衡量这些战略的影响。要真正与他人一起了解他们在压迫环境下的创造性弹性,就需要改变我们发展科学理解的普通方式。它需要的不仅仅是谈论别人的经历,还需要学习如何与他们谈论他们的现实。它要求知道对他们来说什么是重要的。就减少伤害的解决办法和自我管理的堕胎而言,社区解决办法已证明比那些由保健人员控制的举措更具可持续性。与其他经验领域相比,生命伦理学离这些现实更遥远。现在是时候认真考虑我们的学术议程是如何再现权力动态的,以及我们的研究结果是如何使与社区分享权力的替代解决方案沉默的。
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What can be learned from the Global South on abortion and how we can learn?

After the U.S. Supreme Court's decision opened the door to restrictions on abortion, there has been a surge in interest in international spaces in what we can learn from the Global South on how to overcome unjust barriers in health policies and regulations. As Global South thinkers with experience working on abortion, we have been embracing this interest as a genuine openness to transnational learning. However, the response is not straightforward.

It is not about importing solutions from one community to another. We can tell stories of community and women driven solutions to overcome the existing legal and policy barriers to accessing safe and legal abortion, such as the Green Wave movement in Argentina, the harm reduction strategy pioneered in Uruguay, hotline services in Peru or Nigeria, digital health solutions in Brazil or Poland, and accompaniment networks in Argentina, or Mexico. All these stories are lived realities of the creative resilience of those who have been surviving in some of the most restrictive settings in the world.

Throughout these stories from the Global South, there is a recurring theme of creative resilience and models of woman-to-woman care emerging at the community level and then later being embraced by researchers, policymakers, and institutions. It was poor Brazilian women who, in the 1980s, first identified misoprostol as an effective method for self-managed abortion.1 There was no white coat behind the discovery, but the desperate need of a woman seeking a safe means to have an abortion by reading the package leaflets of random medications to find those that showed increased risks of involuntary miscarriage. Forty years later, misoprostol is the main medication used to induce abortion worldwide, according to the World Health Organization. The stories of women who failed or died in this process of self-experimenting using different methods is unknown.

The validation of women's lived knowledge by science takes time and demands the emergence of a new discourse. A good example is what has been called “harm reduction counseling” to reduce the risk of unsafe abortion. In the Global South, the most popular model for providing harm reduction counseling is through hotlines. The person anonymously calls the service and receives evidence-based information about how to safely perform a self-managed abortion. Sharing information is possible even in restrictive settings, where the medicines are not legally available.

Women and other persons share abundant stories of how these hotlines helped them in a solitary selfcare experience surrounded by stigma and criminalization. However, too often, academics and policymakers do not consider these stories of lived experiences to have sufficient value or significance unless these stories have withstood certain methodological criteria. A recent systematic review analyzed the literature on abortion harm reduction interventions without the provision of medications, and, from a group of 118 studies, just four were included in the final analysis.2 The quality of the evidence from the other studies was classified as “poor”, even though “it appears that persons who participate in these interventions have low complication and high satisfaction rates”.

We do not aim to refute the verdict about the quality of the four included studies;3 rather, we want to call attention to the power at play in defining what knowledge counts as valid, where and for whom. We will give an example from the referenced study: the authors “excluded studies describing other approaches aimed to reducing the harms of unsafe abortion if they did not involve direct counselling of pregnant persons within the healthcare system (e.g., the provision of information via hotlines or to pharmacists)”. Moreover, the authors provide no information about the learnings from the excluded studies, which is unfortunate considering that most of the work on harm reduction counselling for self-managed abortion happens at the community level, not in formal health care settings.

Naomi Braine describes the experiences of harm reduction and self-managed abortion as a case of “autonomous health movements”, e.g. where solutions have been developed more by social movements and communities than by evidenced-based public health strategies.4 Why does such a claim of originality matter to a discussion of ethics? Because counseling on harm reduction and self-managed abortion are tactics of demedicalization, i.e., community-led strategies to redistribute power from health professionals to women and other persons. A good example is the “Miso Song”, a song that GIWYN, an organization based in Lagos, Nigeria, created to share knowledge about how and when to use misoprostol for a self-managed abortion, including how a person can identify the side effects, in case they happen: “so just pick 4 miso, in your hands, put 4 miso, in your mouth, place 4 miso, under the tongue, miso is the way”.5 How can we measure the safety, effectiveness, and acceptability of such a unique harm reduction counseling strategy in the format of collective singing? We do not know.

But this is a misplaced question. Just as we need to learn more about how women in the Global South have been confronting unfair barriers to safe abortion and to spaces to share their creative solutions in a transnational community of learning, we also need to develop new methodologies and narratives to measure the impact of those strategies. To truly learn with others about their creative resilience in oppressive settings demands a shift in the ordinary ways we develop scientific understandings. It demands more than speaking about the experience of others, but also learning how to speak with them about their realities. It demands knowing what matters to them. In the case of harm reduction solutions and self-managed abortion, community solutions have proven to be far more sustainable than those initiatives controlled by health care personnel. Bioethics has been even more distant to these realities than other empirical fields. It is time to seriously consider how our academic agenda reproduces power dynamics and how our findings silence alternative solutions that share power with communities.

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