关于健康数据共享行为决定因素的预登记小插图实验愿意捐赠传感器数据、医疗记录和生物标志物。

Q2 Social Sciences
Henning Silber, Frederic Gerdon, Ruben Bach, Christoph Kern, Florian Keusch, Frauke Kreuter
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引用次数: 3

摘要

2019冠状病毒病大流行凸显了高质量数据对经验性卫生研究和基于证据的政治决策的重要性。为了充分发挥这些数据的潜力,更好地了解人们愿意分享其健康数据的决定因素和条件至关重要。基于情境完整性隐私理论、隐私演算和先前关于不同数据类型和接收者的研究结果,我们认为,既定的社会规范塑造了对数据收集和使用新实践的接受程度。为了调查共享健康数据的意愿,我们进行了一项预注册小插图实验。实验场景根据数据类型、接受者和研究目的改变了小插图的维度。虽然有些发现与我们的假设相矛盾,但结果表明,所有三个维度都影响了受访者的数据共享决策。其他分析表明,制度和社会信任、隐私问题、技术亲和力、利他主义、年龄和设备所有权都会影响共享健康数据的意愿。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A preregistered vignette experiment on determinants of health data sharing behavior Willingness to donate sensor data, medical records, and biomarkers.

The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health research and evidence-based political decision-making. To leverage the full potential of these data, a better understanding of the determinants and conditions under which people are willing to share their health data is critical. Building on the privacy theory of contextual integrity, the privacy calculus, and previous findings regarding different data types and recipients, we argue that established social norms shape the acceptance of novel practices of data collection and use. To investigate the willingness to share health data, we conducted a preregistered vignette experiment. The scenarios experimentally varied the vignette dimensions by data type, recipient, and research purpose. While some findings contradict our hypotheses, the results indicate that all three dimensions affected respondents' data sharing decisions. Additional analyses suggest that institutional and social trust, privacy concerns, technical affinity, altruism, age, and device ownership influence the willingness to share health data.

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来源期刊
Politics and the Life Sciences
Politics and the Life Sciences Social Sciences-Sociology and Political Science
CiteScore
2.50
自引率
0.00%
发文量
14
期刊介绍: POLITICS AND THE LIFE SCIENCES is an interdisciplinary peer-reviewed journal with a global audience. PLS is owned and published by the ASSOCIATION FOR POLITICS AND THE LIFE SCIENCES, the APLS, which is both an American Political Science Association (APSA) Related Group and an American Institute of Biological Sciences (AIBS) Member Society. The PLS topic range is exceptionally broad: evolutionary and laboratory insights into political behavior, including political violence, from group conflict to war, terrorism, and torture; political analysis of life-sciences research, health policy, environmental policy, and biosecurity policy; and philosophical analysis of life-sciences problems, such as bioethical controversies.
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