{"title":"关于健康数据共享行为决定因素的预登记小插图实验愿意捐赠传感器数据、医疗记录和生物标志物。","authors":"Henning Silber, Frederic Gerdon, Ruben Bach, Christoph Kern, Florian Keusch, Frauke Kreuter","doi":"10.1017/pls.2022.15","DOIUrl":null,"url":null,"abstract":"<p><p>The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health research and evidence-based political decision-making. To leverage the full potential of these data, a better understanding of the determinants and conditions under which people are willing to share their health data is critical. Building on the privacy theory of contextual integrity, the privacy calculus, and previous findings regarding different data types and recipients, we argue that established social norms shape the acceptance of novel practices of data collection and use. To investigate the willingness to share health data, we conducted a preregistered vignette experiment. The scenarios experimentally varied the vignette dimensions by data type, recipient, and research purpose. While some findings contradict our hypotheses, the results indicate that all three dimensions affected respondents' data sharing decisions. Additional analyses suggest that institutional and social trust, privacy concerns, technical affinity, altruism, age, and device ownership influence the willingness to share health data.</p>","PeriodicalId":35901,"journal":{"name":"Politics and the Life Sciences","volume":"41 2","pages":"161-181"},"PeriodicalIF":0.0000,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"3","resultStr":"{\"title\":\"A preregistered vignette experiment on determinants of health data sharing behavior <i>Willingness to donate sensor data, medical records, and biomarkers</i>.\",\"authors\":\"Henning Silber, Frederic Gerdon, Ruben Bach, Christoph Kern, Florian Keusch, Frauke Kreuter\",\"doi\":\"10.1017/pls.2022.15\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health research and evidence-based political decision-making. To leverage the full potential of these data, a better understanding of the determinants and conditions under which people are willing to share their health data is critical. Building on the privacy theory of contextual integrity, the privacy calculus, and previous findings regarding different data types and recipients, we argue that established social norms shape the acceptance of novel practices of data collection and use. To investigate the willingness to share health data, we conducted a preregistered vignette experiment. The scenarios experimentally varied the vignette dimensions by data type, recipient, and research purpose. While some findings contradict our hypotheses, the results indicate that all three dimensions affected respondents' data sharing decisions. Additional analyses suggest that institutional and social trust, privacy concerns, technical affinity, altruism, age, and device ownership influence the willingness to share health data.</p>\",\"PeriodicalId\":35901,\"journal\":{\"name\":\"Politics and the Life Sciences\",\"volume\":\"41 2\",\"pages\":\"161-181\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-03-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"3\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Politics and the Life Sciences\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1017/pls.2022.15\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"Social Sciences\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Politics and the Life Sciences","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1017/pls.2022.15","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"Social Sciences","Score":null,"Total":0}
A preregistered vignette experiment on determinants of health data sharing behavior Willingness to donate sensor data, medical records, and biomarkers.
The COVID-19 pandemic has spotlighted the importance of high-quality data for empirical health research and evidence-based political decision-making. To leverage the full potential of these data, a better understanding of the determinants and conditions under which people are willing to share their health data is critical. Building on the privacy theory of contextual integrity, the privacy calculus, and previous findings regarding different data types and recipients, we argue that established social norms shape the acceptance of novel practices of data collection and use. To investigate the willingness to share health data, we conducted a preregistered vignette experiment. The scenarios experimentally varied the vignette dimensions by data type, recipient, and research purpose. While some findings contradict our hypotheses, the results indicate that all three dimensions affected respondents' data sharing decisions. Additional analyses suggest that institutional and social trust, privacy concerns, technical affinity, altruism, age, and device ownership influence the willingness to share health data.
期刊介绍:
POLITICS AND THE LIFE SCIENCES is an interdisciplinary peer-reviewed journal with a global audience. PLS is owned and published by the ASSOCIATION FOR POLITICS AND THE LIFE SCIENCES, the APLS, which is both an American Political Science Association (APSA) Related Group and an American Institute of Biological Sciences (AIBS) Member Society. The PLS topic range is exceptionally broad: evolutionary and laboratory insights into political behavior, including political violence, from group conflict to war, terrorism, and torture; political analysis of life-sciences research, health policy, environmental policy, and biosecurity policy; and philosophical analysis of life-sciences problems, such as bioethical controversies.