急性住院出院后1个月获得性脑损伤的体会。

IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES
Kirsten J Talbot, Esedra Krüger, Bhavani S Pillay
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引用次数: 1

摘要

背景:医疗保健专业人员可能对后天性脑损伤(ABI)后的生活有先入为主的看法。了解ABI患者及其重要他人在住院后的生活经历,可以改善医疗保健专业人员与直接受ABI影响的个人之间的沟通。目的:描述ABI患者及其重要他人在急性住院出院一个月后康复服务和恢复日常活动方面的感知体验。方法:通过在线平台进行半结构化访谈,扩展了六个二人组(ABI个体及其重要他人)的经历。对数据进行主题分析。结果:六个主题最能描述参与者的经历;其中两个在ABI患者和他们的重要他人(SO)之间共享。患有ABI的人承认恢复是他们的首要任务,并强调耐心的重要性。需要咨询和来自保健专业人员和同行的额外支持。SO表示需要书面信息,改善医疗保健专业人员的沟通,以及关于ABI含义的教育。2019冠状病毒病(COVID-19)大流行对所有参与者的整体体验产生了负面影响,主要原因是参观时间的终止。心理干预对所有参与者都是有益的。信仰影响了大多数参与者对创伤后康复和适应的态度。结论:大多数参与者接受了他们的新现实,但在情感上需要额外的支持。有ABI的个人将从与处于类似情况的其他人分享经验和学习的机会中受益。在这个关键的过渡时期,精简的服务和改善的沟通可能会减轻家庭的焦虑。贡献:这篇文章提供了关于ABI患者及其重要他人在急性住院过渡期间的观点和经验的宝贵信息。研究结果有助于在abi后的过渡时期继续护理、综合健康和支持策略。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Experiences of acquired brain injury one-month post-discharge from acute hospitalisation.

Experiences of acquired brain injury one-month post-discharge from acute hospitalisation.

Background: Healthcare professionals may have a preconceived idea about life after an acquired brain injury (ABI). Understanding lived experiences of individuals with ABI and their significant others, post-hospitalisation, may improve communication between healthcare professionals and individuals directly influenced by the ABI.

Objective: To describe perceived experiences of individuals with ABI, and their significant others, regarding rehabilitation services and returning to daily activities, one-month post-discharge from acute hospitalisation.

Method: Semi-structured interviews, via an online platform, expanded on the experiences of six dyads (individuals with an ABI and their significant others). Data were thematically analysed.

Results: Six main themes emerged that best described participants' experiences; two of which were shared between individuals with ABI and their significant others (SO). Individuals with an ABI acknowledged recovery as their priority and highlighted the importance of patience. The need for counselling and additional support from healthcare professionals and peers arose. The SO expressed a need for written information, improved communication from healthcare professionals, and education regarding the implications of an ABI. The coronavirus disease 2019 (COVID-19) pandemic negatively influenced all participants' overall experiences, mainly because of termination of visiting hours. Psychosocial intervention would have been beneficial to all participants. Faith influenced most participants' attitudes towards recovery and adapting post-ABI.

Conclusion: Most participants accepted their new reality but required additional support to cope emotionally. Individuals with an ABI would benefit from opportunities to share experiences with and learn from others in a similar situation. Streamlined services and improved communication may alleviate anxiety among families during this crucial transitional period.

Contribution: This article provides valuable information on the perspectives and experiences of individuals with ABI and their significant others during the transition from acute hospitalisation. The findings can assist with the continuity of care, integrative health and supportive strategies during the transition period post-ABI.

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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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