PO-083:黑人和西班牙裔女性的种族、种族主义、居住隔离和癌症生存率的定性研究

Staci A. Young, S. B. Ponce, M. Berendt, C. Cuevas, Jasmin Griggs, C. Jankowski, N. Jones, K. Beyer
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Black participants lived in neighborhoods that were predominantly Black (41%), diverse (32%), and predominantly white (28%), while Hispanic women lived in neighborhoods that were predominantly Hispanic (58%), diverse (8%), and predominantly white (33%). Ages of women ranged from 37 to 81, with a median of 61. Most women had an early stage cancer diagnosis. Narrative responses included: 1) determinants of health such as biology and family history; 2) social status, including socioeconomic status, race, and neighborhood of residence; 3) individual and family stressors such as discrimination, access to health information, and care quality; and 4) social support, resilience, and physiological responses to treatment. Participants discussed living in different geographic locations in the city, personal safety, and exposure to racism in their communities and workplaces. All were hopeful that sharing their experiences would benefit other cancer survivors. 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引用次数: 0

摘要

导读:种族乳腺癌生存差异持续存在,表明并非所有人群都能平等地从癌症控制的进步中受益。个人因素和保健因素不能完全解释这些差异,造成这些差异的因素可能包括体制性种族主义和种族隔离。我们的研究探讨了在高度隔离的大都市地区,女性如何应对癌症幸存者。方法:该研究采用新颖的定性方法,并由社区咨询委员会指导。参与者是从威斯康辛州密尔沃基市招募的。我们采用分层、有目的的抽样方法,包括因社区种族和民族组成而异的幸存者。符合条件的参与者被诊断为乳腺癌,确定为黑人或西班牙裔,并完成了最初的治疗方案。有关种族主义和种族隔离与乳腺癌生存的概念框架指导了各项文书和程序。我们使用叙事探究作为一种反思工具,其中参与者的生活经历被捕获为文本表征。半结构化访谈包括人口调查问卷,生活叙述,以及详细描述自诊断以来居住历史的时间表的完成。访谈记录和分析利用数据驱动的归纳过程和演绎的混合方法,一个与概念框架一致的先验编码模板。我们介绍了这项正在进行的研究的最新发现。结果:到目前为止,已经完成了34次访谈,其中包括自我认同的黑人妇女(n=22)和西班牙裔妇女(n=12)。黑人参与者居住的社区以黑人为主(41%)、多元化(32%)、白人为主(28%),而西班牙裔女性居住的社区以西班牙裔为主(58%)、多元化(8%)、白人为主(33%)。女性的年龄从37岁到81岁不等,中位数为61岁。大多数女性都有早期癌症诊断。叙述性答复包括:1)健康的决定因素,如生物学和家族史;2)社会地位,包括社会经济地位、种族、居住地;3)个人和家庭压力源,如歧视、获取健康信息和护理质量;4)社会支持、恢复力和对治疗的生理反应。参与者讨论了在城市中不同地理位置的生活,个人安全以及在社区和工作场所遭受种族主义的影响。所有人都希望分享自己的经历能让其他癌症幸存者受益。结论:本研究证明了种族、种族主义和居住隔离对乳腺癌生存率影响的重要性。利用叙事探究和居住历史分析,可以更深入地考察当地女性的经历。研究结果可以为以社区为基础的对话、宣传和政策变化提供信息,以减少差距。引文格式:Staci Young, Sara Beltran- Ponce, Madeline Berendt, Carolina Cuevas, Jasmin Griggs, Courtney Jankowski, Natalie Jones, Kirsten Beyer。黑人和西班牙裔女性的种族、种族主义、居住隔离和癌症存活率的定性研究[摘要]。AACR虚拟会议论文集:第十三届AACR种族/少数民族和医疗服务不足人群癌症健康差异科学会议;2020年10月2-4日。费城(PA): AACR;癌症流行病学生物标志物,2020;29(12增刊):摘要nr PO-083。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Abstract PO-083: A qualitative examination of race, racism, residential segregation and cancer survivorship among Black and Hispanic women
Introduction: Racial breast cancer survival disparities persist, indicating that not all populations are benefitting equally from advances in cancer control. Individual and health care factors do not fully explain these disparities, and contributing factors may include institutional racism and racial segregation. Our study explores the ways in which women in a highly segregated metropolitan area navigate cancer survivorship. Methods: The study utilizes novel qualitative methods and is guided by a community advisory board. Participants were recruited from Milwaukee, Wisconsin. We use a stratified, purposive sampling approach to include survivors who vary by neighborhood racial and ethnic composition. Eligible participants have been diagnosed with breast cancer, identify as Black or Hispanic, and have completed their initial treatment regimen. Instruments and processes were guided by a conceptual framework relating racism and racial segregation to breast cancer survival. We use narrative inquiry as a reflexive tool in which participants’ lived experiences are captured as textual representations. Semi-structured interviews include a demographic questionnaire, a life narrative account, and completion of a timeline detailing residential history since diagnosis. Interviews were transcribed and analyzed utilizing a hybrid approach of both a data-driven inductive process and a deductive, a priori coding template consistent with the conceptual framework. We present current findings from this ongoing study. Results: To date, 34 interviews have been completed with self-identified Black women (n=22) and Hispanic women (n=12). Black participants lived in neighborhoods that were predominantly Black (41%), diverse (32%), and predominantly white (28%), while Hispanic women lived in neighborhoods that were predominantly Hispanic (58%), diverse (8%), and predominantly white (33%). Ages of women ranged from 37 to 81, with a median of 61. Most women had an early stage cancer diagnosis. Narrative responses included: 1) determinants of health such as biology and family history; 2) social status, including socioeconomic status, race, and neighborhood of residence; 3) individual and family stressors such as discrimination, access to health information, and care quality; and 4) social support, resilience, and physiological responses to treatment. Participants discussed living in different geographic locations in the city, personal safety, and exposure to racism in their communities and workplaces. All were hopeful that sharing their experiences would benefit other cancer survivors. Conclusions: This study demonstrates the importance of examining race, racism, and residential segregation as contributors to breast cancer survivorship. Utilizing narrative inquiry and residential history analysis allows for a deeper examination of women’s experiences situated in place. Study findings can inform community-based conversations, advocacy and policy change to reduce disparities. Citation Format: Staci Young, Sara Beltran- Ponce, Madeline Berendt, Carolina Cuevas, Jasmin Griggs, Courtney Jankowski, Natalie Jones, Kirsten Beyer. A qualitative examination of race, racism, residential segregation and cancer survivorship among Black and Hispanic women [abstract]. In: Proceedings of the AACR Virtual Conference: Thirteenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2020 Oct 2-4. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(12 Suppl):Abstract nr PO-083.
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