Ann Blomgren Mannerheim, Ulla Hellström Muhli, Eleni Siouta
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引用次数: 12
摘要
由于瑞典最新的精神病学相关改革及其实施,亲属和家庭成员已经从正规医疗保健系统接管了照顾精神残疾者和精神病患者的重大责任。本研究的目的是系统描述和分析父母的非正式照顾责任的经验。问题是,关于父母的非正式照顾活动和责任的经历是什么,父母如何构建和管理他们的照顾责任,会产生什么后果?对8位父母进行了半结构化的深度访谈(16小时的记录材料),他们都是瑞典精神分裂症兴趣协会(Intresseföreningen för Schizofreni (IFS))的成员。对材料的解释采用了一种混合的解释学、演绎和归纳法。父母赋予了他们非正式的照顾责任,在他们的社会背景和社会关系方面,以及在精神科护理代表方面,他们是一个好的、负责任的、负责任的父母。在这种紧张的情况下,父母在与外部世界的互动中,在斗争、合作、回避和适应之间做出妥协。外部世界指的是照顾孩子之外的世界,以及他们自己内心的世界。
Parents' Experiences of Caring Responsibility for Their Adult Child with Schizophrenia
As a consequence of the latest psychiatry-related reform in Sweden and its implementation, relatives and family members have taken over from the formal healthcare system significant responsibility for the care of persons with a mental disability and illness. The aim of this study was to systematically describe and analyze the experiences of parents' informal care responsibility. The questions were, what are the experiences around parents' informal care activities and responsibilities and how do parents construct and manage their caring responsibility and with what consequences? Semistructured in-depth interviews were conducted (16 hours of recorded material) with eight parents who were all members of the Interest Association for Schizophrenia (Intresseföreningen för Schizofreni (IFS)) in Sweden. A mixed hermeneutic deductive and inductive method was used for the interpretation of the material. The parents endow their informal caring responsibility with meaning of being a good, responsible, and accountable parent with respect to their social context and social relationships as well as with respect to the psychiatric care representatives. In this tense situation, parents compromise between elements of struggle, cooperation, avoidance, and adaption in their interaction with the world outside, meaning the world beyond the care provision for their child, as well as with the world inside themselves.
期刊介绍:
Schizophrenia Research and Treatment is a peer-reviewed, Open Access journal that publishes original research articles, review articles, and clinical studies related to all aspects of schizophrenia.