“我们身边的永恒”——母亲对出现复杂神经发育障碍迹象婴儿早期干预治疗服务的经验

IF 1.1 4区 医学 Q3 EDUCATION, SPECIAL
D. Gibbs, P. Harniess, Siew-Lian Crossley
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引用次数: 4

摘要

需要入住新生儿病房的婴儿和最终出现复杂神经发育困难的婴儿通常需要在入院期间和以后更持续地参与早期干预服务。然而,很少有研究探讨早期干预(EI)治疗的家庭经验,从新生儿入院到继续过渡到社区环境。本研究旨在探讨父母对具有复杂新发神经发育困难的婴儿进行情绪干预治疗的看法。采用描述性定性方法,对6位母亲进行了访谈,这些母亲的婴儿曾住进新生儿病房,并为他们的孩子接受了EI治疗服务。采访被录音并转录,然后按主题进行分析。在新生儿病房和出院后,在父母与治疗提供者的关系不断发展的过程中,出现了四个关键主题,阐明了父母的经历:(a)脆弱的开始——适应意外;(b)成为母亲——成为一个家庭;(c)治疗过程;(d)新的现实。增强发展中的父母-提供者关系的属性被确定,包括发展协作沟通方式的重要性,支持家庭发展他们对父母-提供者关系的期望,以及确保明确的性质、范围和EI治疗对孩子和整体家庭发展的贡献。在婴儿入住新生儿病房期间,早期引入EI治疗师可以通过在脆弱时期提供持续的支持来加强父母与提供者的关系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
“The Constant by Our Side”—Mothers' Experiences of Early Intervention Therapy Services for Infants With Emerging Signs of Complex Neurodevelopmental Difficulties
Infants who require admission to a neonatal unit and who ultimately present with complex neurodevelopmental difficulties often require more sustained engagement with early intervention services during admission and beyond. However, there is little research exploring families' experiences of early intervention (EI) therapy received throughout a neonatal unit admission and continuing through transition into the community setting. This study was designed to explore parents' perceptions of EI therapy for infants with complex emerging neurodevelopmental difficulties. Using a descriptive qualitative approach, interviews were conducted with 6 mothers whose infants had been admitted to a neonatal unit and were receiving EI therapy services for their child. Interviews were audio-recorded and transcribed and then thematically analyzed. Four key themes emerged articulating the parent experiences during their evolving relationship with therapy providers in the neonatal unit and following discharge: (a) a vulnerable start—adjusting to the unexpected; (b) becoming a mother—becoming a family; (c) the therapy journey; and (d) a new reality. Attributes that enhanced the developing parent–provider relationship were identified including the importance of developing collaborative communication styles, supporting families in developing their expectations of the parent–provider relationship, and ensuring clarity in the nature, scope, and contribution of EI therapy to their child and overall family development. Early introduction of EI therapists during an infant's admission to a neonatal unit can serve to strengthen the parent–provider relationship by offering a support continuum during a vulnerable time.
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来源期刊
CiteScore
1.90
自引率
9.10%
发文量
24
期刊介绍: Infants & Young Children is an interdisciplinary journal focusing on vulnerable children from birth to five years of age and their families. Of special interest are articles involving innovative interventions, summaries of important research developments and their implications for practice, updates for high priority topic areas, balanced presentations of controversial issues, and articles that address issues involving policy, professional training, new conceptual models, and related matters. Although data are often presented primarily to illustrate points, some types of data-based articles may be appropriate.
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