脑瘫儿童家庭的复原力:对社会保护的启示

D. Sekar, I. R. Adi, Rizky Putri Rachmawati
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引用次数: 0

摘要

无论是专业工作者还是外行人,都普遍认为家庭的弹性受家庭情绪气候的影响。本研究旨在概述韧性与儿童脑瘫家庭,参加YPAC(残障儿童基金会),这是唯一在雅加达脑瘫中心服务。定性研究是用来分析一个案例研究的三个(3)独立的家庭,每个家庭有两个(2)脑瘫儿童。本研究的结果通过观察脑瘫儿童家庭的风险因素和保护因素及其局限性来描述家庭弹性。风险因素是指举报人收入不足且不稳定的状况。另一方面,家庭成员也经常收到歧视,甚至身体暴力。同时,保护因素是力量的源泉,从他们的个性或每个家庭成员的值,承诺,和支持从周围环境中,如大家庭,友谊团体、邻居、和机构。社会支持成为这个家庭的力量源泉,让他们继续与患有脑瘫的孩子作斗争。除了内部因素外,他们与环境的关系也支持家庭的复原力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Resilience of Families with Cerebral Palsy Children: Implications for Social Protection
There are generally agreed by both professional workers and laymen that the resilience of families is influenced by emotional climate of the family. This study aims to provide an overview of resilience in families with children who have cerebral palsy, who attend YPAC (Foundation for Disabled Children), which is the only centre for cerebral palsy services in Jakarta. Qualitative research was used to analyse a case study featuring three (3) separate families, with each family having two (2) children with cerebral palsy. The result of this study describes the Family Resilience by looking at risk factors and protective factors in families with Cerebral Palsy children and all their limitations. Risk factor is the condition of the informant, who has insufficient and unstable income. On the other hand, family members also receive discrimination regularly, and even experienced physical violence. Meanwhile, protective factor is a source of strength from their personality or values of each member of the family, commitment, and support from the surrounding environments, such as extended family, friendship groups, neighbours, and institutions. Social support becomes a source of strength for the family and keeps their fight with their children with cerebral palsy. Apart from internal factors, their relation to their environment also supports the family’s resilience.
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