ICD患者及其伴侣在适应强制驾驶禁令方面的经验:一项定性研究

J. James , J.W. Albarran , J. Tagney
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引用次数: 26

摘要

本文描述了强制的医学法律驾驶禁令对一组内部心脏转复除颤器(ICD)接受者及其伴侣的影响,这是一个几乎没有高质量研究的领域。采用定性框架,并采用半结构化访谈,以引出7名患者及其伴侣出院后的应对经历。从14个访谈记录的分析中,患者和合作伙伴将五个主题归因于强制驾驶禁令。这些包括:怨恨和愤怒的感觉;对他人的依赖增加;缺乏驾驶信心的;并在开车时实施家庭制裁。然而,在驾驶上的关系冲突是一个关键的一致主题,这归因于患者和伴侣之间驾驶角色的变化。数据表明,患者和伴侣可能没有完全意识到禁止驾驶对他们生活方式的直接影响,并且发现ICD接受者在被授权再次驾驶之前的等待期很困难。此外,参与者的经历表明,被禁止驾驶可能与自我形象的改变、独立性的丧失和社会孤立有关。临床工作人员提供协调支持和充分准备病人和他们的合作伙伴出院的重要性进行了详细讨论。伦理方面的考虑和对未来的影响也被解决。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The experiences of ICD patients and their partners with regards to adjusting to an imposed driving ban: A qualitative study

This paper describes the impact of an imposed medico-legal driving ban on a group of internal cardioverter defibrillator (ICD) recipients and their partners, an area where there is little good quality research. A qualitative framework was adopted and involved using semi-structured interviews to elicit the experiences of seven patients and their partners about coping once discharged home. From the analysis of the fourteen interview transcriptions, five themes emerged which the patients and partners ascribed to the imposed driving ban. These included: feelings of resentment and anger; increased dependence on others; lacking confidence in driving; and imposed family sanctions when driving. However, relationship conflicts over driving was a key consistent theme and this was attributed to changes in driving role between patient and partner. The data would suggest that patients and partners might not fully appreciate the immediate consequences of the driving ban on their lifestyle and find the period of waiting before the ICD recipient is authorised to drive again difficult. Additionally, the experiences of the participants suggest that being banned from driving may be interwoven with aspects relating to altered self-image, loss of independence and social isolation. The importance of clinical staff providing co-ordinated support and adequately preparing patients and their partners for discharge is discussed in detail. Ethical considerations and implications for the future are also addressed.

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