基督复临安息日会会友照顾患老年痴呆症的父母的生活经验

Idauli Simbolon, Christine Sacha, E. Hemme, Sapti Heru Widyarti
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There are 3 participants are selected who are fit with the inclusion criterions: immediate family member, seventh-day Adventist church member, live together with their Alzheimer’s Dementia parent who suffer at least 2 years of dementia, and agree to sign inform consent after the full explanation of the study. Data are gathered using semi structured face to face interview in participant’s home setting. Data than transcribed in to world document and analysed using Cresswel step by step content analysis. \nResult: There are five negative categories of family member experiences in taking care of their Alzheimer’s Dementia parent: 1) physical abuse, 2) psychological abuse, 3) social limitation, 4) spiritual distress, and 5) knowledge deficit. 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引用次数: 1

摘要

引言:以往的现象学研究解释了家庭成员在照顾阿尔茨海默氏痴呆症家庭成员时面临许多后果。其后果是经济、社会和心理压力的影响。考虑到这些后果,尤其是东方文化的家庭,即使感到沮丧和负担,也会出于同情或对父母的报复,继续在家里照顾老人。本研究的目的是描述基督复临安息日会成员照顾患有阿尔茨海默氏痴呆症的父母的生活经验。方法:采用现象学设计进行定性研究。选择符合纳入标准的3名参与者:直系亲属,基督复临安息日会成员,与患有至少2年痴呆症的阿尔茨海默氏痴呆父母生活在一起,并同意在研究的完整说明后签署知情同意书。数据收集采用半结构化面对面访谈在参与者的家庭设置。将数据转录到世界文献中,采用克雷斯韦尔逐级内容分析进行分析。结果:家庭成员在照顾阿尔茨海默氏痴呆父母方面的负面经历有5类:1)身体虐待,2)心理虐待,3)社会限制,4)精神困扰,5)知识缺失。研究还发现,家庭成员在照顾阿尔茨海默氏病患者父母时,有几种应对机制或适应机制:1)家庭成员有动力更多地了解阿尔茨海默氏症;2)精神上的成长,他们更多地祈祷并降服于上帝;3)增加对老年人的理解。讨论:根据研究结果,所有的被调查者在生活的各个方面都经历了压力。如果他们不能应付压力,疾病可能会到来,使家庭情况变得更糟。因此,专业的卫生保健必须为照顾阿尔茨海默氏痴呆症家庭的家庭提供支持。引言:以前的现象学研究解释说,家庭成员在家中照顾阿尔茨海默氏痴呆症家庭成员时面临许多后果。其后果是经济、社会和心理压力的影响。考虑到这些后果,尤其是东方文化的家庭,即使感到沮丧和负担,也会出于同情或对父母的报复,继续在家里照顾老人。本研究的目的是描述基督复临安息日会成员照顾患有阿尔茨海默氏痴呆症的父母的生活经验。方法:采用现象学设计进行定性研究。选择符合纳入标准的3名参与者:直系亲属,基督复临安息日会成员,与患有至少2年痴呆症的阿尔茨海默氏痴呆父母生活在一起,并同意在研究的完整说明后签署知情同意书。数据收集采用半结构化面对面访谈在参与者的家庭设置。将数据转录到世界文献中,采用克雷斯韦尔逐级内容分析进行分析。结果:家庭成员在照顾阿尔茨海默氏痴呆父母方面的负面经历有5类:1)身体虐待,2)心理虐待,3)社会限制,4)精神困扰,5)知识缺失。研究还发现,家庭成员在照顾阿尔茨海默氏病患者父母时,有几种应对机制或适应机制:1)家庭成员有动力更多地了解阿尔茨海默氏症;2)精神上的成长,他们更多地祈祷并降服于上帝;3)增加对老年人的理解。讨论:根据研究结果,所有的被调查者在生活的各个方面都经历了压力。如果他们不能应付压力,疾病可能会到来,使家庭情况变得更糟。因此,专业的医疗保健必须为照顾阿尔茨海默氏症家庭的家庭提供支持,
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Life Experience of Seventh-day Adventist Church Member in Caring for Their Parents Who Suffer from Alzheimer's Dementia
Introduction: Previous phenomenological studies explain that family member faced many consequences in caring for family members with Alzheimer’s Dementia at home. The consequences are in the form of the impact of financial, social and psychological pressure. Considering such consequences, families especially in Eastern cultures will continue to care for their elderly at home for reasons of compassion or retribution toward parents even though they feel frustrated and burdened. The purpose of this study is to describe the life experience of Seventh-day Adventist church member in caring for their parent who suffer from Alzheimer’s Dementia. Method: This qualitative study is using phenomenological design. There are 3 participants are selected who are fit with the inclusion criterions: immediate family member, seventh-day Adventist church member, live together with their Alzheimer’s Dementia parent who suffer at least 2 years of dementia, and agree to sign inform consent after the full explanation of the study. Data are gathered using semi structured face to face interview in participant’s home setting. Data than transcribed in to world document and analysed using Cresswel step by step content analysis. Result: There are five negative categories of family member experiences in taking care of their Alzheimer’s Dementia parent: 1) physical abuse, 2) psychological abuse, 3) social limitation, 4) spiritual distress, and 5) knowledge deficit. It also found that there are several coping mechanism or adaptation made by family member in caring their Alzheimer Dementia parent: 1) family members are motivated to learn more about Alzheimer Dementia, 2) spiritual growth that they pray more often and surrendered to God, 3) increase understanding toward elderly. Discussion:  Based on the result of the study, all the informants experienced pressures in all holistic aspects of life. If they are not able to cope with the pressure, illness may be arrived and made the family situation become worse. Therefore, professional health care must provide support to the family who take care of their Alzheimer Dementia family, Introduction: Previous phenomenological studies explain that family member faced many consequences in caring for family members with Alzheimer’s Dementia at home. The consequences are in the form of the impact of financial, social and psychological pressure. Considering such consequences, families especially in Eastern cultures will continue to care for their elderly at home for reasons of compassion or retribution toward parents even though they feel frustrated and burdened. The purpose of this study is to describe the life experience of Seventh-day Adventist church member in caring for their parent who suffer from Alzheimer’s Dementia. Method: This qualitative study is using phenomenological design. There are 3 participants are selected who are fit with the inclusion criterions: immediate family member, seventh-day Adventist church member, live together with their Alzheimer’s Dementia parent who suffer at least 2 years of dementia, and agree to sign inform consent after the full explanation of the study. Data are gathered using semi structured face to face interview in participant’s home setting. Data than transcribed in to world document and analysed using Cresswel step by step content analysis. Result: There are five negative categories of family member experiences in taking care of their Alzheimer’s Dementia parent: 1) physical abuse, 2) psychological abuse, 3) social limitation, 4) spiritual distress, and 5) knowledge deficit. It also found that there are several coping mechanism or adaptation made by family member in caring their Alzheimer Dementia parent: 1) family members are motivated to learn more about Alzheimer Dementia, 2) spiritual growth that they pray more often and surrendered to God, 3) increase understanding toward elderly. Discussion:  Based on the result of the study, all the informants experienced pressures in all holistic aspects of life. If they are not able to cope with the pressure, illness may be arrived and made the family situation become worse. Therefore, professional health care must provide support to the family who take care of their Alzheimer Dementia family,
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