镰状细胞病背景下的复原力问题:喀麦隆儿童的经历

Njifon Nsangou H
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摘要

目的:本研究旨在了解17岁女孩菲德尔(Fidele)的复原力问题,她是喀麦隆一名患有镰状细胞病的儿童的妹妹。材料与方法:通过访谈和在菲德尔家庭的家中绘制家庭图来收集数据。通过专题分析和绘图分析方法对这些数据进行了分析。结果:家庭对镰状细胞病的禁忌使菲德尔对患病的妹妹感到奇怪。面对妹妹的危机,她仍然无能为力,父母对她的监视和保护使她免受来自家庭以外的人的危机和攻击行为。这种美化是恢复力的潜在因素,因为它使她积极对待孩子,从而使他生病。结论:本研究强调了复原力与文化之间的关系,并表明需要支持生病的孩子、他的兄弟姐妹、他的父母和医疗机构内的专业人员。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Resilience Issues in a Sickle Cell Disease Context: The Experience of a Cameroonian Child
Objective: This research aims to understand the resilience issues in Fidele, a 17-year-old girl, sister of a child with sickle cell disease in Cameroon. Material and Method: The data were collected through an interview and a family drawing in Fidele Family’s home. These data were analysed through the thematic analysis and a drawing analysis approach. Results: The family taboo regarding sickle cell disease makes Fidele feel strange about her sick sister. She remains powerless in the face of the crises of her sister with whom she is prettified by the parents concerning her surveillance and protection against crises and aggressive behaviour coming from people outside the family. This prettification is a potential factor of resilience insofar as it makes her active with the child and hence his illness. Conclusion: This study highlights the relationships between resilience and culture and shows the need to support the sick child, his siblings, his parents and the professionals within healthcare institutions.
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