有伴侣和有孩子:患有先天性心脏病的成年人和一般人群的比较:一项为期15年的病例对照研究

IF 0.3 4区 医学 Q4 CARDIAC & CARDIOVASCULAR SYSTEMS
S. Geyer, C. Dellas, Thomas Paul, Matthias M黮ler, K. Norozi
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引用次数: 0

摘要

目的:探讨先天性心脏病(CHD)患者是否比一般人群更不可能有伴侣或孩子。方法:采用纵向研究,对来自医院人群的同一患者(n = 244)和来自德国社会经济调查小组(GSOEP)的对照组(n = 238)进行两项评估,采用父母教育程度、患者年龄和性别作为匹配标准。第一项患者研究于2003年5月至2004年6月进行,第二项研究于2017年5月至2019年4月进行。对照来自2004年和2018年的gsop调查。根据手术类型对冠心病严重程度进行分类:治愈性、修复性或姑息性。结果以单身生活为衡量标准,对于后代,结果以是否生育为衡量标准。结果:女性冠心病患者中单身人士的比例高于对照组,差异取决于疾病的复杂程度(治愈:OR = 5.5;修复:OR = 1.9;姑息性:OR = 2.7)。在男性研究人群中,患者和对照组之间没有统计学上的显著差异。在孩子方面,冠心病妇女和对照组之间出现了明显的差异。患者生育子女的几率低于对照组(治愈:OR = 0.3;修复性:OR = 0.3;姑息性:OR = 0.2)。儿童冠心病患者(女性:5.6%;与一般人群相比,男性:4.9%)高于预期(1%)。结论:以伴侣关系和儿童作为结局标准,冠心病患者与普通人群相比处于不利地位。在女性患者中,这种疾病的社会后果比在女性患者中更为普遍。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Having a Partner and Having Children: Comparisons of Adults with Congenital Heart Disease and the General Population: A 15-Year Case-Control Study
Objectives: To examine whether patients with congenital heart disease (CHD) are less likely to have a partner or children than individuals from the general population. Methods: Longitudinal study with two assessments of the same patients (n = 244) from a hospital population and controls (n = 238) from the German Socio-Economic Panel (GSOEP) using parental education, patients age, and sex as matching criteria. The fi rst patient study was conducted between 5/2003 and 6/2004, the second one between 5/2017 and 4/2019. Controls were drawn from GSOEP-surveys 2004 and 2018. CHD-severity was classi fi ed according to type of surgery: curative, reparative, or palliative. Living single was used as outcome measure, for offspring the outcome was having children or not. Results: Among women with CHD the rate of those living single was higher than among controls with the differences depending on disease complexity (curative: OR = 5.5; reparative: OR = 1.9; palliative: OR = 2.7). No statistically signi fi cant differences between patients and controls emerged in the male study population. With respect to children a marked difference emerged between women with CHD and controls. Among patients the odds of having children were lower than among controls (curative: OR = 0.3; reparative: OR = 0.3; palliative: OR = 0.2). The rate of patients with children with CHD (women: 5.6%; men: 4.9%) was higher than expected (1%) if compared with the general population. Conclusions: Using partnership and children as outcome criteria, patients with CHD are disadvantaged if compared to subjects from the general population. In female patients the social consequences of the disease turned out as more pervasive than in women.
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来源期刊
Congenital Heart Disease
Congenital Heart Disease CARDIAC & CARDIOVASCULAR SYSTEMS-
CiteScore
0.40
自引率
33.30%
发文量
37
审稿时长
6-12 weeks
期刊介绍: Congenital Heart Disease is an open-access journal focusing on congenital heart disease in children and adults. Though the number of infants born with heart disease each year is relatively small (approximately 1% of the population), advances in treating such malformations have led to increased life spans for this population. Consequently, today most patients treated for congenital heart disease are over the age of 20. What are the special needs of adults with congenital heart disease? What are the latest developments in the care of the fetus, infants, and children? Who should treat these patients? How should they be treated? Congenital Heart Disease focuses on these questions and more. Conceived as a forum for the most up-to-date information on congenital heart disease, the journal is led by Editor-in-Chief Vladimiro L. Vida, MD, Ph.D., Professor in Cardiac Surgery, University of Padua in Italy, as well as an international editorial board. Congenital Heart Disease publishes articles on heart disease as it relates to the following areas: • Basic research of congenital heart disease • Clinical pediatric and adult cardiology • Cardiac imaging • Preventive cardiology • Diagnostic and interventional cardiac catheterization • Electrophysiology • Surgery • Long-term follow-up, particularly as it relates to older children and adult congenital heart disease • Exercise and exercise physiology in the congenital patient • Post-op and critical care • Common disorders such as syncope, chest pain, murmurs, as well as acquired disorders such as Kawasaki syndrome The journal includes clinical studies, invited editorials, state-of-the-art reviews, case reports, articles focusing on the history and development of congenital heart disease, and CME material. Occasional issues focus on special topics. Readership: Congenital Heart Disease was created for pediatric cardiologists; adult cardiologists who care for patients with congenital heart disease; pediatric and pediatric cardiology nurses; surgeons; radiologists; anesthesiologists; critical care physicians and nurses; and adult support staff involved in the care of patients with congenital heart disease.
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